ok so I last posted about
how terrible prednisone from hell is...
and how it has effected me thus having to eliminate that as a med to help me stay "normal" including any of steroid. right now I still feel a lot of anxiety I was wondering if that is one of the effects of not having the pred. anymore because I really wasn't weaned off just kind of stopped because it was making me mentally worse. as far as my GI symptoms I feel a lot of cramping and pain in my stomach no bloody stools just real loose and a lot of urgency went poo four times so far today .
I know that I had some blood tests done and it show there is no sign of inflammation very little in fact while in the hospital for the pred .induced psychosis had a flex sig. done and they gathered biopsy's so im waiting on those as well im really tired of this I know there are tons of folks on here that have had far worse experiences and folks who don't really suffer as much I noticed everyone's experience is very different I just don't know how to know when I feel better I may have had a good day compared to all the other days I was in the bathroom every other minute. I still feel tired crampy vulnerable appitite has grown incredibly just don't feel like im in remission I really don't know how to recognize that.
28yr old Female
Diagnosed April 2013
first symptoms November 2012
limited to transverse colon
colonoscopy given in April showed chronic
ulcerative colitis biopsy show Pan colitis
medications I ever used: meslimine, uceris, prednisone 40mg, balsalazide 3x a day, ultram and Percocet for pain, mirilax, multivitamin, bentyl. im sure there are more to come whoop dido cant wait