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feeling so frustrated

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Ulcerative Colitis
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Posted 7/6/2013 1:13 PM (GMT 0)
Ok-
I know I have to be patient, but I had a miserable day yesterday and am terrified that my meds are not really working after all. I have been on lialda (4 a day) for 3 weeks (since I was diagnosed) and cortemena for two weeks and had been doing really well. I even had several days with only 2bm's and no extra mucous but yesterday I had 5 and bms and 3 other episodes of gas and some bleeding. Feeling a bit better today, still some urgency and some blood but then again I have only been up for 3 hours so far!
This is so frustrating! I have cut caffeine and gluten from my diet ( I was vegan so I haven't had dairy in ages) and have had to add eggs and white meat back into my diet (red meat has always given me D) since I have given up beans and legumes for a while... I have an appointment with my Dr on Tuesday so I will bring all of this up then but I am not sure he will offer much by way of moral support! Thanks for letting me vent...
Posted 7/6/2013 2:16 PM (GMT 0)
Hi, I am sorry you're stressing. I think sometimes it's best to try to keep calm and be patient. So many times I've had a bad day (or two or three) and I've gotten myself so worried about it, I felt even worse. Now, I try to take it one day at a time. If I have a bad day, I don't expect tomorrow to be worse, I hope for positive change. Lialda and cortenemas are mild. Hopefully you can get things managed with 5ASAs and enemas. I couldn't. After a course of pred, I had no choice but to get on 6mp. I don't think I would have ever tapered off prednisone otherwise. Hopefully when you see your GI on Tues he will offer some good options. How about adding Rowasa or Canasa in the morning?
Posted 7/6/2013 11:36 PM (GMT 0)

Hi all. I was just diagnosed with ulcerative proctitis on Thursday. While at first I was so relieved it was not colon cancer (as the doc suspected), I am now feeling really overwhelmed and depressed about this. I don't understand how I can live in this body for 42 years with no issues and then all of the sudden have a disease for life. I guess others have felt this way too? Any thoughts for learning acceptance of this new life?

Thanks for reading.

Posted 7/6/2013 11:48 PM (GMT 0)
Hi feeling down, welcome to HW.

Sorry to hear about your diagnosis. Although I've been dealing with this since my 20s, I can still relate to the feeling of being fine one day and having a chroinc illness the next. It's really difficult to deal with but keep in mind, most people get into remission and it's not a constant fight.

please start a new thread introducing yourself.
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