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OMG, I think I'm feeling better

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Ulcerative Colitis
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Posted 8/7/2013 8:44 PM (GMT 0)
This morning I woke up, had a lose BM, and haven't pooped since. I've been going 10 plus times a day for 10 weeks, have lost tons of weight, feeling like crap and then today is normal.

I had my third Humira shot on Monday, took my 35mg of Pred (been on it for about a month and am cutting down by 5 a week since Sunday), my Cipro, my Flagy, and my antianxiety and went to my Doctors appointment. My Doc and I discuss my symptoms like they've been for weeks and he wants me to get a second opinion from one of his associates (4 hour drive away and can't see the guy until December).

I go home and no poop. No real urge to poop, just a regular day. I drank some coffee, had a pepsi and a bite of ice cream because why the hell not. Nothing. no poop. no turtle, no urge, no nothing. Tummy is a bit rumbly but I'm fine.

I hope this isn't a fluke. Maybe the third shot finally kicked in. It's weird. We were discussing surgery and now this.

Oh, he thinks I also have IBS too which is just great.
Posted 8/7/2013 8:52 PM (GMT 0)
the best advice I could give you is enjoy it and take things day by day. Try to build on it but at the same time don't push yourself in terms of diet. Don't tempt fate and eat foods that you know aggravate UC. For example, coffee usually induces going more...

i really hope pred+humira helps you and the taper off prednisone goes smoothly. :)
Posted 8/7/2013 9:06 PM (GMT 0)
Grats! Hope it keeps getting better for you.
Posted 8/7/2013 9:08 PM (GMT 0)
That's the thing, I don't have "trigger" foods. I can eat almost nothing an poop all day long or I can eat curry and poop all day long (it just burns more). I've never stopped drinking coffee even during my worse flare. I'm miserable enough and I'm not going to stop the few pleasures I have which is a french press pot in the morning.

I'm going to go slow with the diet though. I'm not rushing out to each chili or anything. I have some more of this chicken noodle soup to eat and then I will go from there. Just happy that I haven't pooped all day.
Posted 8/7/2013 9:45 PM (GMT 0)
awesome r man !

"all things in moderation" per my 85 year young mom !
Posted 8/7/2013 11:02 PM (GMT 0)
Congrats! Hope it continues for you!
Posted 8/8/2013 2:51 AM (GMT 0)
Oh wow, I hope you get some relief and a long remission with Humira. Funny how just when you think you've hit the end of your rope, something changes. That's great news.
Posted 8/8/2013 4:55 AM (GMT 0)
Fantastic!! I hope this is the beginning of a long upward swing toward restored health and happiness!!
Posted 8/8/2013 12:42 PM (GMT 0)
ended up having a total of 3 BMs yesterday which is great for me. All lose but no blood or mucus. Woke up this morning and I've had 2 so far, one blood and mucus, which is normal for me at any point of a flare and the other not so much.

Doc asked me to get a second opinion and the Doc he wants me to see is 200 miles away and can't see me until Dec. I'm going to Philly in Sept for a family trip (it's my home town) and going to see if anybody can recommend a specialist for me to see there.
Posted 8/8/2013 1:03 PM (GMT 0)
Time to get training for the next Iron Man...
Posted 8/8/2013 4:04 PM (GMT 0)
i'm sweatin it out in preparation for the next Weenie Man !
Posted 8/8/2013 4:10 PM (GMT 0)
LOL - is that where you arm-chair quarterback the race?
Posted 8/9/2013 8:30 PM (GMT 0)
Update! 1 bm today only. Finished my flagy and cipro and still cutting pred by 5 a week (at 35). Added asacol Hd 6 pills with the humira and an antidepressant. Just a little pain in the rectum. No real blood or mucus.

Hope this keeps up!! Also hoping that with the antibiotics done things firm up a bit. Still have a fissure though
Posted 8/10/2013 12:13 AM (GMT 0)
That's great - everything except the fissure anyway. I hope you continue to feel well too!
Posted 8/10/2013 1:16 AM (GMT 0)
Hi I'm new here but glad that your feeling better
Posted 8/10/2013 9:20 AM (GMT 0)
Congrats!!
Posted 8/10/2013 11:59 AM (GMT 0)
Almost there guys! Little D last night and a small BM this morning but feeling like a human being. Hope this keeps up!!
Posted 8/10/2013 12:35 PM (GMT 0)
yahoo ! keep it up r guy !
Posted 8/10/2013 12:41 PM (GMT 0)
Argh. Cutting down to 30mg pred and a small touch of blood and mucus. Hope it's just a blip on the radar.
Posted 8/10/2013 1:41 PM (GMT 0)
Sounds like you are on the mend which is great, however you may need to stay on the pred longer. Or switch to something less systemic like Uceris? Just until your colon really settles down.
Posted 8/15/2013 11:19 AM (GMT 0)
This morning I woke up and had mucus again out of no where. No blood but I feel like I have to go when I don't and there is a little burning. This sucks. Hopefully it was just something I ate last night and it passes. I am still on Pred (30 right now and tapering by 5 a week), AsacolHD x6, and I'm do for my next Humira shot on Monday.
Posted 8/15/2013 4:22 PM (GMT 0)
I really think it had to be the black beans I ate for dinner the past two nights. I make a home made cuban black bean dish with chirzo, black beans, onions, green peppers cooked for hours with garlic, cumin, oregeno and a bay leaf and served over white rice. I think was too much for my gut and I'm pay the price.

One other question. Anybody else have their appetite go way down and food not taste right after a flare? I'm losing weight even on 30mg of Pred because food doesn't taste right and I don't have an appetitie.
Posted 8/15/2013 4:28 PM (GMT 0)
rguyer, I've noticed for the past 3-4 weeks and in the hospital that my appetite is way down. im on prednisone and Imuran and I force myself to eat. I've been drinking a lot of absorb plus shakes since it's basically like drinking flavored water. I can't lose any more weight either. it's like i'm not in the mood to eat, you know? it's kind of weird.
Posted 8/15/2013 5:02 PM (GMT 0)
Yeah, I find myself having to force myself to finish my meals. A can of vegetable barley soup which shouldn't be too much food for anybody was too much today.

Just want this to go totally into remission. My BM count is way down and the pain is gone but the constant feeling of having to just poop one more time is annoying. I think almost all of my problems are down to the last few centimeters of my colon now.
Posted 8/15/2013 6:24 PM (GMT 0)

rguyer said...
I really think it had to be the black beans I ate for dinner the past two nights. I make a home made cuban black bean dish with chirzo, black beans, onions, green peppers cooked for hours with garlic, cumin, oregeno and a bay leaf and served over white rice. I think was too much for my gut and I'm pay the price.

One other question. Anybody else have their appetite go way down and food not taste right after a flare? I'm losing weight even on 30mg of Pred because food doesn't taste right and I don't have an appetitie.

i would attribute it to food related as well. beans are high in fiber and can be tough on the system, combine that with veggies (which can also be tough to break down) and spices and i'd be shocked if it wasn't food related. although, that meal sounds amazing lol.

while normally prednisone caused me to eat more and gain weight, my flare in march I was on 60mg of prednisone and still managed to lose 30 pounds in a month... so yes, it happens
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