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Ulcerative Colitis
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Posted 8/10/2013 1:21 PM (GMT 0)
Anybody heard of this being used in UC? I was searching for autism but came across a quick reference to Crohns, so curious if anybody stumbled across with UC.
Posted 8/10/2013 1:39 PM (GMT 0)
interesting !
Posted 8/10/2013 4:46 PM (GMT 0)
Yes..very interesting!!!

http://www.google.ca/search?sourceid=navclient&aq=hts&oq=&ie=UTF-8&rlz=1T4GGNI_enCA464CA464&q=GcMAF

Posted 8/10/2013 5:51 PM (GMT 0)
I think this is heading in the right direction.
Posted 8/10/2013 6:23 PM (GMT 0)
This is interesting. Probably what exactly is wrong with all of us.
Posted 8/10/2013 9:04 PM (GMT 0)
Correct, but the major problem is, nobody seems to be working on it. AFAIK, only 3 companies have a know-how on producing this thing and it costs fortune (Euro 660 or JPY 65,000 for 8 shots) to buy. There is no publication with clinical trial. Everything that is published so far was done in petri dish.
Someone developed oral form which looks like yogurt, costs $120/month to buy starter culture for this yogurt. The directions of making and using it are rather fuzzy. They do not tell you the strains of bacteria in the starter culture.

BUT, all these guys give big talks telling everyone how fascinating this stuff is. (then why did you not set up a trial or even patented it?)

I have been searching this stuff for last 2 days. On paper, it sounds really promising but the questions I raised make me think again going this route.
Posted 8/10/2013 11:36 PM (GMT 0)
Yeah. Paper is different than reality. I seem to remember several cures or vaccines for HIV that medical people were betting the farm on.
Posted 8/11/2013 11:56 AM (GMT 0)
I read a bit on the Probiotics page and I also found it strange that they want you to basically pay to be in their trial? Maybe I am old fashioned but isn't it normal to get your trials done and then start selling it?
Posted 11/3/2013 6:44 PM (GMT 0)
Dr. Cowan (Fourfold Path To Healing) in CA works with GCMAF in his practice. One can work with him in-person or by phone.

The price is a lot but in my opinion is worth it if it works! It's not something you stay on for a long time and now there are other forms of gcmaf (sub-lingual drops, etc) which are less.
Posted 11/4/2013 12:05 PM (GMT 0)
There is a guy in NYC as well, who works with ASD kids and some other patients. It costs fortune and the results are mixed. So I am on the fence.
Posted 1/29/2014 4:48 AM (GMT 0)
I struggled with Crohn's/ UC for decades- was kind of an inconclusive diagnosis. I do want to encourage people and say that there is hope. With the GAPS diet or for some the Paleo diet and the right doc's advice, not to mention a lot of hard work, it can be done. Just had an almost perfect colonoscopy. I really would recommend the new book Your Personal Paleo Code. I am using the Gc-MAF yogurt now to deal with residual issues of fatigue and congestion. Gut must not be perfect or the immune system. I am hoping for good results.
Posted 1/29/2014 10:05 AM (GMT 0)
@happytobeme,
Who do you consult for GcMAF yogurt. Please share the costs involved as well.
Posted 10/3/2014 1:18 AM (GMT 0)
Saw the post thought id chip in my two pennys worth since I've been on it for nearly two weeks.
So far some positive unexpected things have happened for a serious concussion I had four years ago.
As for my severe colitis, i am only two weeks in. And its definitely isolating exactly where my condition is. For me the sensation is the equivalent to a burning sensation when on the loo and then a tickling sensation in my gut after.

No meds as brain problem decided to get in the way.
Scd diet, fmts from healthy friend got me 80% improvment. Trying to use gcmaf to kick this thing once and for all. 32now had some form of colitis since I had glandular fever when I was 15 and didn't even know it.
Was extremely severe colitis when diagnosed supposed to have surgery in a month.
Now down five loos on average a day but only gas. No blood, probably poop only twice of those after eating. I go to the loo to avoid the scary follow through just incase haha.
Hope this helps.
I don't think u can take meds on this stuff. Its designed to seriously ramp up ur immune system. If u want a protocol, hit the scd diet lose the weight, I did haha, start fmts from healthy buddy. Read dr borody study. Hold them in for eight hours.....yes 8!!! I recommend bedtime.
After a month or two if u think the meds are out, try the gcmaf, then get a weird runny nose because your immune system is fully active and killing everything that's trying sneak arouund your body.

Keep you posted
Posted 4/9/2016 7:33 PM (GMT 0)
hey tryitall was just wondering how you have made out since than?
Posted 4/10/2016 4:30 PM (GMT 0)
yes doing very well, my immune system is now really quite strong. I did take a lot of it though at a high dose for a looong time.
I now have mild night sweats every other night. Considering my health over the years and the amount of toxic and virus' floating about I now think that my body sweats to get rid of something that's trying to get the better of me. I suffered badly from chronic fatigue. I didn't even believe it existed, I just thought people were making it up.
I now however wake at 6.50am every morning completely alert. in the evenings my colitis does kick in and as soon as I lie down I have to go and that keeps me up nearly an hour a night. I still wake up very refreshed.

I cant recommend it enough. just make sure you get the English stuff. Apparently others are weaker.

the Italian team have just released their version called "rerum" apparently its even more powerful at the same full price but you get 30% more per vial. you can however haggle with the English to get a better price so up to you who you prefer.

doing good. getting back to work life is on the up.

im going to try Russian peptides next to apparently activate the stem cells for my bowel. very cheap.
Posted 5/11/2016 7:18 PM (GMT 0)
Really interesting stuff. Question 1, did you take the maf by injection or yogurt/ tablets? Do you think it's worth it while on Remicade, or should be used after I've weened off? I've heard of the use of peptides before (BPC-157) for it's healing properties, but I don't really feel that comfortable injecting myself. I'm currently on a 80% raw diet under the protocol of the top naturopath in Montreal. My inflammation levels have decreased significantly and my Dr. is finally on board to start reducing the frequency of my remicade. Eliminating gluten, dairy, all processed foods, and the intake of a nutrient dense diet, supplemented with the right herbs seems to be working wonders. I think cannabis oil and maf yogurt may the the last 2 additions to my protocol to finally achieve the intestinal health I've been asking Santa for since I was diagnosed at 12 years old. Thanks for your input!
Posted 5/11/2016 11:07 PM (GMT 0)
Hi chrons panda.
I did the injection, it wont work will worth remicade in your system. You have to go cold turkey so to speak. Have you heard of the specific carbohydrate diet? That's the diet for us. There is a huge Facebook group who are very hard core. I'm doing really well on it. It took a long time to work for me as I was so severe. They wanted to remove my intestine, now I have the whole thing probably 70% functioning and distantly getting better.
Peptides are taken orally as fast as I am aware.
I did the mad yoghurt orally and enemas, definitely helped. Very strong product all round though.
You only have to jab yourself in the shoulder, 8/10 times I didn't feel it. Highly recommend the gcmaf. In my opinion although I still have Colitis I believe I have fixed the immune system side of my problem and now I am dealing with the dysbiosis of the bacteria.
Posted 5/12/2016 12:21 AM (GMT 0)
I'm familiar with the SCD and seems like my next option if needed. I know someone who was in really rough shape and is now thriving on the alkaline diet + herbs prescribed by the naturopath. I've been doing well on it also, pretty tough to stay strict though. I'm not sold yet on the alkaline acidity theory, but the idea of keeping 80% of our diet organic vegetables I'm completely sold. If you're absorbing food well it may help with your dysbiosis. I did a full month eating 8 fruits, two huge bowls of a (10 diff. veggies) salad with quinoa, 2 herbal drinks per day plus a few supplements. My intestines felt clean and the idea that we all have food sitting in our gut for days is a real concern. I truly believe we should be going to the washroom a couple of hours after every meal. In our mouths, absorbed, and out the other side (Formed, floating, short trip to the bathroom and almost no toilet paper need). I truly believe all the toxins etc. in our food supply sitting in our guts for 3 days is a big contributor to inflammation and other symptoms in crohns and UC. You took the GcMAF injections, enemas, and yogurt? Something about injecting myself with something I bought on the internet feels weird. Once I'm off remicade I'll think about it though. As far as peptides I have no idea, but I'm pretty sure body builders inject certain ones to help with muscle tears and injuries. Anyways good to meet you, once you've "trieditall" don't forget to drop a post and elaborate on what worked.
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