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Ulcerative Colitis
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Posted 9/7/2013 1:08 PM (GMT 0)
Anone else struggle with UC and food allergies? My son is currently allergic to EVERYTHING it seems: milk, soy, rice, pea, egg yolk, turkey, all nuts, all fruits with a pit, yeast. And the list seems to grow or change with every skin or blood test.
Posted 9/7/2013 1:29 PM (GMT 0)
I have allergies and asthma, although most of my food allergies have really lessened as I have aged and had children. They can be terribly frustrating for everyone involved and I am sorry you and your son are struggling. Have you tried DAO (enzyme that breaks down histamines)? I also find that if I am sick, tired, or generally run down my allergies are worse so it makes sense to me that his body is fighting everything at this point. What are is allergic responses to foods?
Posted 9/7/2013 1:47 PM (GMT 0)
When the colon is inflamed many foods causes problems. I'm not sure I would rely on tests alone unless there is an anaphylactic reaction (difficulty breathing, fast heart rate, rashes or other highly noticeable symptoms).

I've been through the "food intolerance" torture trying to find what my gut is happy/unhappy with.
Yes it is very hard and harder still for a young person to deal with. Food is a very social element in our lives.

I see you/he failed with SCD, so did I because my gut did not like many of the "legal" foods".
I kept eliminating food types until my gut settled down and then after a while could start adding them back in one by one.

I never got too thin, who knows why.
Have you tried Paleo Diet yet? That seems closest to my gut being happy. Fewest problems.
My gut is happiest with meat protein and low-fiber veggies.
Yes I cheat every now and then with no permanent damage but can't keep up the cheating or it's downhill symptom-wise.

My suggestion is to stay away from common intolerances (dairy, gluten, high-fiber anything). Keep up calories with "good" oils like olive and coconut oils.
There are some terrific cookbooks out there for multiple food issues. Look for "Cooking for Isaiah" (about a boy) in the library. Yummy recipes. Good luck.
Posted 9/7/2013 2:40 PM (GMT 0)
I'm with Imagardener. Skin tests are pretty accurate but I wouldn't put much stock in blood tests for allergies. They are notoriously inaccurate. I do believe that eating foods you are allergic too can cause UC'rs problems but don't eliminate foods from your diet just because some blood tests show you are allergic. There are also different levels of being allergic. Some levels are very miniscule while others could cause you to die from eating a peanut or a strawberry. I say go by the skin tests, totally ignore the blood tests (unless they back up the skin tests), and listen to what the body tells you. Your son has to eat something. As the real meds help his condition he will be less and less "allergic" to all the things he is testing positive for.
Posted 9/7/2013 3:11 PM (GMT 0)
gary doesn't have a clue what he is talking about -

skin tests are for allergies
blood tests are for intolerances
two completely different tests - both can be extremely accurate -
Posted 9/7/2013 5:17 PM (GMT 0)
shannonemily

something else to remember (and tell your son): it's possible (and very likely) these food intolerances will not last forever. As his gut heals it will be able to handle some things again, perhaps not in huge quantities but my motto is "It's not forever".

Really important, otherwise it's easy to be very sad thinking "no ice cream forever?", "no chocolate forever?" "It's not forever" has been true for me.
Posted 9/7/2013 6:40 PM (GMT 0)
ditto 100% ima !

healing can take a while - but it will happen -

Posted 9/7/2013 11:30 PM (GMT 0)
Regarding blood testing for food intolerance:

"In conclusion, food allergy testing by IgG ELISA/EIA panels is a convenient and easy way to diagnose food allergies in a patient. It is, however, a testing method that is questionable in both its theory and validity. It is also costly and may not be reliable, depending on which laboratory you use."

http://www.tldp.com/issue/174/IgG%20Food%20Allergy.html
Posted 9/8/2013 12:35 AM (GMT 0)

Hi I am still a pretty new member and wanted some feed back. Has any of you downloaded the e book from Adam Schuler' website about his experience with U.C. and he also has an e cookbook. I was just curious as I saw there are two other guys with their stories on line and their books are also on sale, Jordan and Steve.  I went to the book store the other day to see the book, "Breaking the Vicious Cycle" by Elaine Gottschall.  The book is tiring to readat and hard to understand and the recipes you have to be home cooking all day.  I just want something that is easier to read and easier recipes to enjoy. I am trying to go back to work this Monday and since I am home now all I am doing is cooking and eating at home. So if anyone downloaded any of these books and liked them and think it is worth buying please let me

know? I really need help taking control over the U.C. and C-Diff

I am on 30 mg. of prednisone for the past 4 days. My GI doctor told me to stop the Lialda while on the Prednisone since I was getting a lot of cramping.  I am not happy about being on Prednisone again last time was last summer. I am also waiting for my stool test to come back next week to see if the C-Diff went away. Have had C-Diff for the past 3 summer.  I am getting confused at my food intake. I know I need to follow something. I have been doing my own thing. Not eating bread. It is hard to not have potato's so a couple times of week I do.

I have been eating fish, turkey, chicken, lean pork cutlet.  No more Boar's Head Low sodium turkey breast or chicken breast for take to lunch anymore. Now it has to be fresh cooked at my house with some cooked vegetables and I have been making homemade applesauce and eating that with bananas.

I am also trying to get into a F.M.T. study and I should know next week if I am a candidate. I already spoke to the Doctor's nurse and she said I sounded qualified for the study so I am praying for that to rid me of C-Diff and hopefully help the U.C.

I have U.C. for a year and my last colonoscopy said I have Proc***.  My insurance does not pay for the VSL #3

DS. My previous insurance company did so I was sprinkling the packets in my food.  Are their VSL Caplets instead and where is the cheapest place I can buy them.  Thank you everyone for your help.

Has anyone been to a Crohn's and Colitis Support Group.  Any feedback?

Posted 9/8/2013 12:35 PM (GMT 0)
I take the capsules. I buy them directly from the VSL website.
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