No more gluten ever again! This time I mean it

Welp, this time i've really done it. My parents came for a visit, and we went out to some great restaurants in the downtown area and off the coast. They were amazing, and while half-assing my previous knowledge of what menu items may contain wheat/gluten, I tested my limits by ordering and continuing to eat fries that were flour battered, or grit-cakes that had bits of flour to add a crisp texture, and grain alcohols.

After their leave, I began experiencing some pretty disgusting bowel movements. My stomach has been in knots, and there is just shards of blood in the bits of stool i have. Thank God the pain is manageable though.

I'm just shocked though, that my body can prove itself healed after a few months and then revert back to hell. It's disgusting and i'm so foolish for ever thinking that I can just try a bit of wheat/gluten when I'm feeling good. NEVER again.

I'll be doing some more testing this fall to rule out anymore intolerances, it still baffles me that the only testing that came back positive for gluten intolerance was a saliva test, but not my Metametrix stool test. Humm..

A month before this, I assumed the corn tortillas/chips from a few of my preferred lunch places (ie: Moes) was GF, they are not, and back then I was only experiencing a bit of symptoms.

Has anyone else shared a similar experience with gluten?

no, maybe it's the fried cooking that did it. But you can continue to believe what you want to believe and at the end of the day all that counts is the remission however that might be attained.

You will never make me believe that gluten has anything to do with anything when you can get this disease at 1 year old or at 65 or in between. It's more of a gene that mutated or some hormonal thing.

Before this whole disease, before way back, you could eat those things no issues. Now, you say you are healed, yet you eat something fried and shard of blood. I don't think anything is healed. I think the immune system needs a reset in its parameters.

soystud said...
well dude, when you can put that fix in a bottle, send it to me - till then, i'll keep doing this thing here -

Of course, you have to do exactly what you have to do to keep remission. It would be illogical otherwise.

If stereo doesn't eat what he thinks he shouldn't eat and is it constant remission then it's great. But then he asked a question? I answered that I don't believe any of it.

Does it matter what I believe? No. Do I have the answer what caused it? No.

Why do you get this disease at 1 year old? I dunno
Why you can be perfectly fine no issues until your 65 and then get it? I dunno
Why does it go away randomly without any meds and without changing nothing? I dunno.

But all these situations are strange, they don't quite correlate to one specific thing, i.e. the gluten.

I think the immune system is out of whack and is misfiring.

ya know dude, I agree with you 100% - with most things in life that go wrong, I like to know why - not uc - I don't care why it do what it do, all I care about is making it not do

unless you had a violent gluten allergy, the relatively small amount of flower in those coatings, would not produce that effect. not like you ate a loaf of bread or something.

the grain alcohol may be another matter. many others have reported adverse effects of alcohol, even though other others have no problem.

either you have IBD,and the word for "prove itself healed" is remission, or you have a gluten intolorance all along. it is possible. you do have close family with IBD however, which makes it more likely you have IBD.

did you have endoscopic remission? maybe your IBD was simmering below clinical levels and the alcohol and the harder to digest gluten proteins turned the simmer into a boil.

@SomeDude, your thinking about gluten and genes is very primitive. We know genes aer causal, but not 100% and not same % for everybody. There are 163 loci associated with IBD - the number of combinations of some or many of those loci gives a huge variety. We know there are environmental triggers of both initial onset and subsequent flares. Its called an interaction. Add in the gut microbe dysbiosis and you have 3-way interactions. Making statements that known triggers can't have "anything to do with anything" is just ignorant. It flies in the face of years of solid research finding and gained knowledge about IBD.

Oh yeah.. I missed the alcohol. That DEFINATELY kills my gut.

soystud said...
gluten & putin - both bad dudes !

at least you have an answer ster - now just abide by the rules and your happy colon will keep on a rollin -

just think - it could be sex you're having to say goodbye to ;-)

me, i'm done with that craptt - I still dabble with a little corn and rice once in a while, but that's it - I really like living !

Haha soy, but I did say goodbye to sex for almost 2 years into this UC mess. I gotta give you and others props, I had to find a way to consume other grainy-carbs, and somehow it worked.

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I dont deny I have this horrid disease, its just that what I presently deal with is typically gluten related, and thats how I explain it to others around me. I notice the difference when on/off gluten. This is maybe the 10th time i've experienced something like this and it always correlates to eating gluten in the last week before symptoms.

They (medical researchers) need to delve deeper into these two large diseases (crohns & colitis) because, our symptoms are vast and varied compared to one-another it just doesn't compare.

I missed the alcohol thing in the original post. I know you will never believe me Stereo but it has been proven that many UC'rs are low on the digestive enzyme DAO, which breaks down dietary histamines. Whenever I ate high histamine foods (alcohol is high in histamines) I would suffer from what you went through shortly after the restaurant. After taking the digestive enzyme DAO before meals I could resume eating those things again with no problem. It is not necessary to take DAO if you don't want to, you can just eat a low histamine diet. Histamines are in many foods that contain gluten so it is very possible to confuse having a gluten problem with actually having a histamine intolerance. That could explain the results of your Metametrix stool test and your strong belief that you have a gluten problem. By eliminating gluten you have also cut down on your histamines, making you believe that you have identified the problem when if fact you found gluten guilty based on circumstantial evidence. Alcohol can cause severe problems in many UC'rs and I'm betting my money that it is not because of the gluten, but because of the high histamine content in most alcohols.

If I have any flour now I will be bleeding by the following morning. Once I stopped eating flour it seemed like my body became much more sensitive to the stuff.

I'm sorry to hear that kazbern, sounds similar to what i've been dealing with the past few days. I will say, i've been fortunate enough to never go about maybe 4-5 BMs a day during a flair, and when busy, typically 2-3, but my normal is 1-2 formed a day.

Gary, i believe you on it, in fact you have talked about high histamine food being a culprit in the past, and i don't doubt it. I think alcohol destroys the stomach lining when abused. Its all very possible, i won't rule anything out.

I am taking Betaine HCL with pepsin and bromelain. It's cut back the acid reflux I used to have, but I'll look into DAO. Thanks