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Posted 9/13/2013 10:57 PM (GMT 0)
Is there one?

I just got diagnosed, so I have NO clue, but(t) heh - if I go off gluten, are there people here who believe I could cure the bleeding without trying medication?

I have diverticular associated colitis which is (apparently) the new kid on the block.

Post Edited (lealee) : 9/15/2013 7:57:26 AM (GMT-6)

Posted 9/13/2013 11:23 PM (GMT 0)
Lots of non-agreement on whether gluten is a problem. From forum people, from doctors, others.
I was tested (celiac) results negative, so I didn't quit eating gluten for years.

Later, in desperation (Rx meds just do nothing for me), I quit gluten. Bleeding stopped.
I am just one person so take it for what it's worth.
I love bread products and haven't eaten it in since then (OK a small bite once a year, I'm human).
That tells you how seriously gluten affects my gut.

We don't need gluten to live, don't need it for health, so here's no negative to stop eating it, except it takes a strong will.
Don't ask for opinions, stop eating it for a couple weeks and see if your symptoms improve.
Answer your own question.
Posted 9/14/2013 12:19 AM (GMT 0)
There is one lab out there in the world that claims the standard test for celiac only detects the problem once 90% of the damage is done. Their test (which is a fecal sIgA test) can tell if there is damage being done to the small intestinal microvilli long before you have no microvilli left. At least, this is their claim. I can't substantiate it, because I'm not a doctor, but they do have a patent on it. There is a guy over on a microscopic colitis board that believes strongly in it, and can tell you lots about why its valid.

Anyway,I say that to say that there is reasonable (imho) doubt regarding the standard test being reliable and sensitive enough.

yes, definitely test it yourself. It takes a strong will, but it has a reasonable chance of improving your health if you do it.
-GZ
Posted 9/14/2013 2:01 AM (GMT 0)
I made a post in Stereo's thread you might want to check out. I strongly believe that some people confuse a gluten problem with a histamine intolerance. They have many similarities but it would be beneficial to experiment for those that believe this is their problem to see which one you actually had as they would both be treated slightly differently.
Posted 9/14/2013 2:07 PM (GMT 0)
@imagardener2 - You're right, I should test it myself. My sis-in-law doesn't eat gluten, but I know so little about it, I didn't even consider trying out this theory until I saw mention of it here. Thx for your thoughts!

@GutsZilla - I will go over to that board and check it out, thx! Re: "strong will" - it'll be difficult for me since I don't live alone and buying gluten free products is expensive - but I might just give it a try.

@garylouisville - I will check out the thread (once I figure out how) - I really need to educate myself now- I've been getting sicker (with lots of things), but if I can change soemthing I would love to learn how. Thank you!
Posted 9/14/2013 2:21 PM (GMT 0)
You do not need to buy gluten-free products to go gluten-free. Just stop eating bread, breaded products. Eat meat/protein/fish in it's natural form plus veggies. None of these have gluten.
There are very few "gluten-free" products I will eat but everything I eat is gluten-free.
Posted 9/14/2013 2:28 PM (GMT 0)

imagardener2 said...
You do not need to buy gluten-free products to go gluten-free. Just stop eating bread, breaded products. Eat meat/protein/fish in it's natural form plus veggies. None of these have gluten.
There are very few "gluten-free" products I will eat but everything I eat is gluten-free.

I didn't realize that, the only issue is I cannot eat too much protein (other health concerns). I have many complex health issues cry - but I will start looking into this. Thank you soo soo much!
Posted 9/14/2013 2:32 PM (GMT 0)
thanks ima - exactly what I was gonna say, cept I was too busy eating my all natural, organic peach and I didn't want to put my sticky, juicy fingers on the keys !

so yes, just maybe add some fruit in there and you're good to go - just eat real food - if it comes from a factory in new jersey, that's not it !

Posted 9/14/2013 3:12 PM (GMT 0)

soystud said...
thanks ima - exactly what I was gonna say, cept I was too busy eating my all natural, organic peach and I didn't want to put my sticky, juicy fingers on the keys !

so yes, just maybe add some fruit in there and you're good to go - just eat real food - if it comes from a factory in new jersey, that's not it !

Got it! No factory food. lol - seriously, thanks for the advice, I really do need to look at my diet from a healthier standpoint.
Posted 9/14/2013 6:10 PM (GMT 0)
There's a balance...if you have no sensitivity to gluten, then it's not a problem. Try not to create something that's not there.

Basically, everything we ingest has something that's been studied and deemed bad for us...organic included. There's nothing that says you have to consume everything that's available. Use your common sense.

q
Posted 9/14/2013 8:18 PM (GMT 0)

quincy said...
There's a balance...if you have no sensitivity to gluten, then it's not a problem. Try not to create something that's not there.

Basically, everything we ingest has something that's been studied and deemed bad for us...organic included. There's nothing that says you have to consume everything that's available. Use your common sense.

q


Best advice yet - I seemed to have lost my common sense about the same time I got my diagnosis (2 days ago). I think I'll likely get it back in short order, at least I hope I do! turn
Posted 9/14/2013 8:57 PM (GMT 0)
I think media and such has drilled into us that gluten is bad and that's just not the case with the majority of the population. Unless you have a true allergy to it, then you shouldn't worry about it in my opinion.
Posted 9/14/2013 10:51 PM (GMT 0)
I am not allergic to gluten and yet it is definitely bad for my colon.
The media had nothing to do with my going gluten-free.
Posted 9/14/2013 11:28 PM (GMT 0)
it's takes my body 2-3 months to feel the effects of gluten - testing confirms I have an issue - but like ima says, for some testing does not tell the whole story -

the point is, nobody needs grains to live - period - people just like grains - so giving up gluten for life seems like a small sacrifice compared to having your colon taken out -

everyone has a choice - give em up for a while and maybe you'll have a healthier body - won't know until you try - if not, there are certainly other options -

and i'm glad the media is out there bringing things to my attention - it's still my choice what I do with that information - blaming the media for anything these days is totally irresponsible - people still have brains attached between their ears, don't they ?

Post Edited (soystud) : 9/14/2013 6:51:15 PM (GMT-6)

Posted 9/14/2013 11:47 PM (GMT 0)
Unless you have a sensitivity to gluten, you shouldn't go off of it. But if you wish to go gluten-free then you must find the right balance in building up the nutrients that are lost.

I'm off of gluten given that it bothers both my IBS and UC. Plus the medication I'm on prohibits me from having it.
Posted 9/15/2013 4:16 AM (GMT 0)
If you want to give it a try... you have nothing to lose and everything to gain. I tried for 4 months and had convinced myself that it was helping... however... it didn't. I then went SCD for 2 months after that... still no results. For me, what I eat definitely is not a trigger, but like everyone, some foods irritate my system more than others... especially while flaring.
Posted 9/15/2013 1:37 PM (GMT 0)
I really don't know where some people get the information that gluten is bad for everyone. I think that is totally not backed up by any evidence at all and is a made up fad. I have seen many medical professionals state that going gluten free is actually bad for your health, not good - unless you do actually have a gluten intolerance or sensitivity. Most people who accept the fad self diagnose and have no proof that they do have a problem. Now it is possible that some of these people do have a problem but have not had it officially diagnosed but those are probably more of the exception that the rule.

As I have stated in some other threads there is evidence that some UC'rs have a histamine intolerance which closely mimmicks a gluten intolerance and by eliminating gluten they cut down on their histamines, which gives them the false impression that their problem is gluten when it is really a histamine intolerance. There is actually a difference in the two as it is possible to eat gluten which doesn't increase histamines and going gluten free and eating high histamine foods (such as ripe fruits) could cause you problems you wouldn't suspect because you have the false impression in not eating gluten you are eating the best possible diet for you. There is a very, very, small percentage of people who actually have a gluten problem, far less than those that have joined the craze, thinking that gluten is bad for everyone and everyone would be healthier by not eating any. That simply flies in the face of the facts. Grains are actually very healthy in most individuals except for those that actually do have a gluten problem.
Posted 9/15/2013 1:57 PM (GMT 0)

garylouisville said...
I really don't know where some people get the information that gluten is bad for everyone. I think that is totally not backed up by any evidence at all and is a made up fad. I have seen many medical professionals state that going gluten free is actually bad for your health, not good - unless you do actually have a gluten intolerance or sensitivity. Most people who accept the fad self diagnose and have no proof that they do have a problem. Now it is possible that some of these people do have a problem but have not had it officially diagnosed but those are probably more of the exception that the rule.

As I have stated in some other threads there is evidence that some UC'rs have a histamine intolerance which closely mimmicks a gluten intolerance and by eliminating gluten they cut down on their histamines, which gives them the false impression that their problem is gluten when it is really a histamine intolerance. There is actually a difference in the two as it is possible to eat gluten which doesn't increase histamines and going gluten free and eating high histamine foods (such as ripe fruits) could cause you problems you wouldn't suspect because you have the false impression in not eating gluten you are eating the best possible diet for you. There is a very, very, small percentage of people who actually have a gluten problem, far less than those that have joined the craze, thinking that gluten is bad for everyone and everyone would be healthier by not eating any. That simply flies in the face of the facts. Grains are actually very healthy in most individuals except for those that actually do have a gluten problem.

This is likely a silly question, but what are histamines and how do we reduce them? I know anti-histamines are good for allergies, but beyond that I don't know what they are or what they are not.

Thx
Posted 9/15/2013 2:40 PM (GMT 0)
There are histamines in foods we eat or foods which raise histamine levels in your body. Antihistamines aren't usually very effective when dealing with dietary histamines. You can search for high histamine foods. There are low histamine diets. It has been proven that many UC'rs are low on the digestive enzyme DAO, which helps eliminate excess dietary histamines from your body. By eating foods high in histamine you can suffer histamine overdose, which can bring on or worsen UC symptoms. I take the digestive enzyme DAO with meals, which helps neutralize excess histamine and it does wonders for me. You can also just eliminate those foods from your diet and see if it makes a difference. I actually do a combination of taking DAO when I voluntarily want to consume these foods and also watch what I eat when I don't take the DAO.
Posted 9/15/2013 2:55 PM (GMT 0)
In this forum, you will be able to find someone who believes almost anything under the sun will cure or control UC. Really, all you can do is try things for yourself and see what works for you.
Posted 9/15/2013 2:55 PM (GMT 0)
"As I have stated in some other threads there is evidence that some UC'rs have a histamine intolerance which closely mimmicks a gluten intolerance and by eliminating gluten they cut down on their histamines, which gives them the false impression that their problem is gluten when it is really a histamine intolerance. There is actually a difference in the two as it is possible to eat gluten which doesn't increase histamines and going gluten free and eating high histamine foods (such as ripe fruits) could cause you problems you wouldn't suspect because you have the false impression in not eating gluten you are eating the best possible diet for you. "

how does any of that make sense ?

"I actually do a combination of taking DAO when I voluntarily want to consume these foods and also watch what I eat when I don't take the DAO."

why would you do that ?

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