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Ulcerative Colitis
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Posted 10/8/2013 11:47 PM (GMT 0)
So my long awaited appointment is tomorrow. I made the appointment in early July. I was diagnosed with minor inflammation in March and put on Canassa which seemed to work well until last month when I started to flare. No pain but urgency, mucus and some blood. Symptoms have slowly been getting better but I still do not feel great at night. Im wondering what he will say and prescribe. I really do not want to take steroids and do not think I need to go in that direction yet. Ive researched many of the drugs and it seems like there are some options to be used first. I have been taking probiotics and have eliminated gluten and most grains(almost paleo).
Here are the questions that I have for him
1. could this be Giardia or salmonella?(I know simple and have been tested but still going to ask)
2. What should I do if I feel a flare coming on? Or what to do when if it does arrive?
3 How do I prevent this from happening and get into a long standing remission.
4. Having trouble with Canassa. 1. seems like its not working now 2. I take it at night and sometimes have to go in the middle of the night loosing the canassa.
5. Could running be a cause of this issue? Flare happened when I had to stop running after hurting my knee but UC started at first when running.
6 Diet? I am going to see a nutritionist next week but am looking for there opinions.

Thanks for any advise or questions that I need to ask. When I talked to him in March he seemed so unconcerned with the results that I really thought I was fine. I really want to nip this in the butt( pun intended)

Thanks
Deeppowder
Posted 10/9/2013 1:27 AM (GMT 0)
i have thought about food poisoning and/or stomach flu when I got this flare up i'm currently in, which I'm going to question my doctor about at my appointment tomorrow as well. I have read online that things like that can cause a flare up so it's better to ask and be safe and get rid of the root problem than to not ask at all. sorry to hear that your dr almost seems uninterested in your case, maybe its time to dr shop? I mean no offense in that of course but a good relationship with your doctor is important, in my opinion :) as far as diet, each person is different. my doctor told me that ill soon find out what foods just don't agree with me. most people say stay away from spicy food, and i eat hot pickles! and have never once had a flare up after eating one. each body deals with food differently, but i think a nutritionist is a great idea, so they can help with a healthy diet and you don't have to go through the trial and error of finding out which food works for you and which doesn't. Best of luck at your appointment tomorrow!
Posted 10/9/2013 3:38 AM (GMT 0)
Good luck on your appointment. Looks like you have lots to talk about. Keep reading here and you will gain important insights into what has and hasn't worked for your fellow travelers.
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