New kid on the block

Your last tests were not fine if they showed moderate colitis. Your doctor's treatment plan is very logical. I would compare this to a boxing match. Sometimes you punch the other boxer and he gets a little woozy but if you don't smack him down with that knockout punch he may regain his footing and knock you out instead. Go for that knockout punch.

Davey,

Welcome to the forum.
There are other things you can do to help as well.
Have you considered: probiotics, slippery elm powder, l-glutamine, adequate vitamin d3 levels?

I'll share with you what's helped me and hopefully it can help you as well.

Some meds work for some and not for others.
For me, the traditional meds failed me and the mesalamines I became intolerant of.
And when the doc gave me a choice of surgery or remicade, I balked and had to find my own way.

He also told me diet has nothing to do with UC, but I found that it has a great deal to do with worsening its symptoms!

I found that by doing these things it helped control my symptoms by 75%:
1) adequate high intake of vitamin d3 ( need to get your levels checked first)
2) probiotics are key, are you on any?
3) slippery elm powder to coate the intestinal tract helped greatly
4) l-glutamine amino acid powder for long term colonic repair
5) food combining
6) diet modification as in gluten and dairy free
7) rectal meds help lots of folks out


The Last 25% was taken care of by LDN, low dose naltrexone, which put me in remission.
If any of this interests you, there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.
I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.
I hope you feel better and let us know how we can help you.

InSoFla said...
Some meds work for some and not for others.

A corollary to that statement is some supplements work for some and not for others. You need to discover what works for you. If there is any guarantee in this business it's that whatever protocol works for one individual will not work for everyone else. Don't be swayed by zealots, everyone is different.

I recommend browsing our signatures for new ideas to see what works for each of us. Some very common supplements are probiotics, vitamin D, and a soluble fiber such as psyllium or Citrucel. Some of the more recent recommendations are wild oregano oil and resistant starch.

Diet modifications works for many of us, but not all. Even those of us who watch our diet have different verboten foods we need to avoid. That is why a food diary can be helpful.

Mesalamine enemas such as Rowasa is very popular and is considered one of the most effective remedies here on this forum. But for some reason most doctors do not prescribe enemas. Kudos for your doctor for mentioning them to you.

If you do find that avoiding a certain food or taking a specific med or supplement really helps you then by all means please share it here. It could be anything from oregano oil to bee propolis to mesalamine enemas. I would never have thought that avoiding shellfish or adding powdered psyllium seed would help me unless I first heard about it here on this forum. At the same time I recognize that it will not help everyone.

For example taking glutamine as a supplement. Find out if it helps you, but don't take anyone's word here as gospel. I take glutamine sometimes, it is helpful as a short term remedy. But no matter what you hear it may not be for everybody and there may be a danger taking high doses of it every day.

articles.mercola.com/sites/articles/archive/2004/05/01/glutamine.aspx
The major use for high-dose glutamine would be to repair gastrointestinal injury. In such cases, I would recommend short-term use only...

Glutamine accumulation has also been found in Alzheimer’s disease, Huntington’s disease and high levels of brain glutamine have been associated with a worse prognosis in Lou Gehrig’s disease. Likewise, recent studies have shown that high brain glutamine levels increase brain levels of free radicals and impair the ability of brain mitochondria to produce energy. When the brain produces low energy, excitotoxins, such as glutamate, become even more toxic. It has been shown that the reason for glutamine toxicity under these conditions is because it is converted to the excitotoxin--glutamate...

Newer studies indicate that actually it is the glutamine that is causing the brain’s injury. Increasing glutamine in the diet would significantly aggravate this damage

really? what are the other forums you've frequented?

q

Like which ones...