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cautiously optimistic about Wild Oregano Oil (85% Carvacrol) Part II

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Ulcerative Colitis
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Posted 3/7/2014 2:03 AM (GMT 0)
Oh great thanks! For once we get something in Canada that's not in the states! Jason national nutrition has free shipping with a minimum purchase, if you happen to have lots to buy, or $12 to the states.
Posted 3/8/2014 10:33 PM (GMT 0)
WOO update:

now day 5

taking WOO 5 drops 3x/day before meals

Overall it seems to be making an improvement:

- less visits to the bathroom, less blood and less pain

- today, started to see formed stools in the mix

however:

- passing more watery stools now (never had this problem before)

- also, still very tender and so passing anything is not great fun at the moment

will post again after another few days.
Posted 3/8/2014 11:26 PM (GMT 0)
Anyone got any experience of taking WOO while on pred? My worry is, if it has antibacterial but not anti-fungal properties, the candida that takes hold when you take antibiotics or pred could get worse if WOO is knocking out bacteria and leaving more room for fungus?
Posted 3/8/2014 11:40 PM (GMT 0)
I had no issues with both (Pred and WOO) actually it was Pred/Imuran and WOO/Thyme Oil all together... Woo and other oils have some pretty decent anti-fungal aspects as well. Best to play it safe though and make sure to include a good Reuteri and other probiotics.

For me Kefir Milk, L. reuteri, and Renew Life 100 billion is what I take for some specific reasons. Anyway, they seem to all work quite well together.
Posted 3/9/2014 10:42 PM (GMT 0)
Thank you CM. Just got some Reuteri in the post from the US. Not found it in any probiotic on sale here in the UK. Hoping the bacteria survived the journey!
Posted 3/10/2014 2:22 AM (GMT 0)
There's BioGia in the UK.. also in the US and Canada... Here is the UK site www.biogaia.co.uk/frontpage

Here you can just get it at Shoppers Drug Mart behind the pharmacy counter as they keep it in the fridge... or Costco actually has it as well..

Its just straight Reuteri - or at least here in Canada is.

I think most don't know about it just cause they sell it primarily for babies for Colic.

I always get an odd look from the person behind the counter when they ask how my baby is doing on it or if I've tried it for my baby before, haha...
Posted 3/10/2014 2:26 AM (GMT 0)
Also are you having your GI follow your blood work etc... or told them you want to try WOO or whatever it is that your taking?

Just so your aware I did and they follow my blood work to make sure there's no issue between meds and this.

Always a good idea to tell them and keep them informed and make sure they have no objections.
Posted 3/10/2014 12:04 PM (GMT 0)
My GI team are very traditional so I can't see them endorsing or working with me on WOO. I do have the basic bloods pretty regularly, especially as flaring a bit now and on pred and may start Immuran. FBC, ESR, CRP, Liver and kidney function. Anything else you looked at specifically in your bloods related to WOO?

Big thank you for the biogaia link, not come across them before. The make I got from the US is the Nature's Way one which also has acidophilus, b longum and rhamnosus in it. Claims it does not need refrigeration.

I guess we need to think of our colons as our babies we are nurturing! I've also come across Reuteri discussed a lot on forums for women with chronic bacterial vaginosis, at least they are not asking you how you are getting along with that :-)
Posted 3/13/2014 10:55 PM (GMT 0)
Update:

Day 10

8 drops of WOO (80% but mixed with olive oil as per recommendations) 3-4x/day before meals
VSL#3 in the evening on empty stomach
L. reuteri in the daytime (empty stomach)
Boswellia and tumeric with each meal
Homemade yogurt (SCD) after lunch

WOO/probiotics seem to have been effective

No blood anymore, no pain, less watery stool and more formed stools but still a lot of rumbling/passing wind, tenesmus and some tenderness.
Seeing a slight improvement everyday and feeling good about the combination. Slow but constant improvement since the first day.

I've worked up to this dose over a period of 10 days. Really feels like it is cleaning out my gut.

Will post again with more updates
Posted 3/14/2014 2:17 AM (GMT 0)
@london - to funny... and I don't know, my GI decided what tests where needed and I don't have the form by me but I can find them perhaps. I really think it was all liver stuff so the same as what they do for Imuran as I was taking this.

@crofters - well that is just super awesome!! I followed a similar path. Blood went away immediately and then things were just weird like you say loose but more firm stool - then over time it became more and more firm stool till "d" and watery stool was pretty never. Took me I'd say 4 months to get to formed solid stool 90% of the time. Also I think I took/take a higher dose.

In any case congrats on seeing some improvement. That's just so darn cool to read about. Quick question - do you have full on Ulcerative-Colitis? Or crohn's-colitis or ummm pancolitis etc etc or one of those type of things?
Posted 3/14/2014 5:20 PM (GMT 0)
Hi Mark

It certainly is a great feeling to have recovered so quickly!! Today feeling even better. This is the first time I've managed to resolve a flare without having to fast. And so i've managed not to lose so much weight this time.

Also, you've actually answered my next question, but I'm wondering now how long does one need to continue with the WOO? I have read that a MAP test to confirm eradication of the mycobacteria is the best way to know when to stop. Not sure if I can get this test done in the UK>

FYI I was doagnosed with eosinophilic colitis of the transverse colon and proctitis last year in January (via colonoscopy/biospy). The diagnosis was 'mild', but the tests were done during a period of remission. Based on my latest consultation (different gastro this time), she dismissed the EC and thinks its just straight UC. I'm awaiting blood and stool tests for a second opinion. Refused the scope this time round as I felt unecessary and I was flaring, but I wonder if a scope would be necessary to get MAP tested for??
Posted 4/9/2014 9:14 AM (GMT 0)
Any updates here from anyone?

And has anyone ever heard from protocolteck?... the one that came up with this..

I had my 6 month GI appointment a few days ago and he was visibly shocked when he came in the room and looked at me. In fact he walked in and said wow... I assume you're doing pretty good! I seem to range between 95 and 100% remission now all the time with solid stool pretty much always, no blood, no mucus. My weight has maintained itself and slowly crept up and stabilized and I can actually eat things like wheat crackers and bread now and then without any ill feeling whatsoever. But I'm chicken to venture to far down that path - though I do test it from time to time. All foods are fine with me know and cause no issue.

This is the first time in 12 years I've had this response. And no IBS like symptoms anymore. Even on Remicade I went into clinical remission as soon as I went strict SCD along with it - but I still has major IBS & D type problems.

Still following the same thing I have been for the last six months. Blood work all came back perfect and over the last 6 months it didn't have any negative effects with Imuran. My GI kept my blood work weekly for a long time when I first started this just to be sure so this was very cool of him. He had his concerns over a few things between the WOO and Imuran. So did I.

Now comes the decision do I want to drop the WOO and Thyme oils or drop the Imuran. I still haven't decided which. Been procrastinating. My GI wants me to stay on Imuran and see what happens when I taper off the WOO/Thyme but he said again, ultimately it's my decision and he'll support me either way but his preference is for me to remain on Imuran. He's been quite good at following things with me on this so I think I might do what he wants. I can always return if things go bad again. Part of me very much wants to drop the Imuran though... just to see...

Anyway - was curious how anybody else was... specially anyone with Crohn's-Colitis in which this seems to have the biggest effect.

EDIT: @crofters - I'm sorry I missed your post from long ago. I'm not sure how long. I'm on 6 months and trying to decide what I want to do.

Post Edited (Canada Mark) : 4/9/2014 3:23:55 AM (GMT-6)

Posted 4/9/2014 11:55 AM (GMT 0)
That's great news!
My kids brought home a stomach bug three weeks ago and I got it, albeit mildly, so I started woo again to help with the healing process. I was totally symptom free when I stopes it in December-ish but now I am seeing a day or two a week with mucus and the occasional spot of blood in mucus (less than a 1/4 inch is size). I went to see my dr last week about it after speaking in the phone. He did a quick check and says he doesn't see any signs of inflammation (but how far can they see with the little scopes?) and to keep doing what I am doing. I have also put some weight back on (maybe more than I would like) and he was very happy about that.
Game plan is to hold at 4 drops 2x a day until mid April, then reduce to nothing again by mid may.
Posted 4/9/2014 8:51 PM (GMT 0)
Hmm... That's great to hear that you made it to symptom free there for a bit. Actually that;s pretty darn amazing.

If it helps any I had an experience a few weeks ago where I caught a head cold and wham - a bit of mucus, loose stool and discomfort came back for a few days but eventually passed and things went back to normal.

I'd love to hear if you get back to symptom free! Good luck!
Posted 4/9/2014 9:49 PM (GMT 0)
I was in a moderate flare but a long lasting flare last year when I first came across this topic. I was going about 5-6 times a day with blood and mucus for about half of those times a day. I was about 9 months into the flare before I bought the WOO, same brand as yours. And took it for about 5-6 days 3x a day. On day 6 I woke up and had major urgency and ran to the bathroom and power shot out what appeared to be about 3 cups of pure blood and clots. I said enough of the WOO, but strangely enough things got better fast, after about a week no more blood, another week it became solid again, another week the cramping started to disappear. After a full month and half I would say I was back into remission, this happened about late January of this year. I think that had everything to do with the WOO as the previous 9 months I tried all the tricks and nothing was working at all.


Now just last week I started having shooting pains in my gut again, no blood no urgency and only going 2x a day (normal for me). So I have started taking it again about 4 days ago to see if it will pull off its magic again. So far I'm still having some cramping but not as bad as a few days ago and my bowel movements have remained at 2 a day with no blood or urgency. So I'm at this point still a believer.

I have thought about posting about this and digging this thread back up gave me the inspiration to write about my experiences with it so far. And a big thank you to all you guys that put this stuff out here, I'm not a big time poster on this forum but I'm a big time sufferer of UC and this site is the best thing I ever came across for help.
Posted 4/9/2014 11:14 PM (GMT 0)
Hey Badgut - Thanks for sharing that!

I have to say that's the most intriguing post I've read in a long time for a variety or reasons. It's good when people do try something and are able to help others decide be it good or bad.

Do let us know what happens going forward.

And thanks again.
Posted 4/11/2014 1:33 AM (GMT 0)
@crofters

Not sure if you're still around on here, but was curious as to how you made out - you seemed to be responding quite well at first. Did it hold or did you fall back?
Posted 4/14/2014 3:50 PM (GMT 0)
4 days into trying WOO for a second time and already back into remission. Of course I wasn't bleeding or having multible BM's a day. I only had sharp pains in my stomach, which always has been the first sign of a flare for me. But currently I have no pains or discomfort, my appetite has returned and I actaully feel hungry at meals, something that I never feel when I have the slightlest sign of a flare. I'm completely shocked that this has worked twice when needed for me. I plan on continuing to take it for a few more days this time and see if it will help hold me into remission longer than last time which was only about 2 months after stopping the WOO. Of course it didn't help that I was feeling so good I had a few times that I went out drinking, somethng I probably shouldn't ever do, alchohol has always gave me issues. But I just couldn't help myself feeling so good and it had been well over a years since I had anything to drink.
Posted 4/14/2014 6:38 PM (GMT 0)
@badgut - sorry if you posted this already but do you have straight out Ulcerative Colitis? Or pancolitis, crohn's colitis or one of the ummm variations I guess you could call it.

Just trying to keep track of who has what, haha.
Posted 4/14/2014 9:42 PM (GMT 0)
I have straight UC or so they say - my first flare that put me in the hospital showed inflamation and ulcerations all the way through with minimal ulcerations in the transverse in comparsion of ascending and descending, which I found strange not sure if that is typical or not. As a side note I always thought my UC was caused by yeast or some other bacteria, no real reason except for a gut feeling and typical symptoms people get with a yeast infection inside their digestive track, but no hard evidence I'm right. I asked the doctor once if he would test me for yeast and he refused to do so.
Posted 4/15/2014 4:41 AM (GMT 0)
I have Lichen Planus, another chronic autoimmune condition, which has flared up recently, it's the worse I have had, ever, and I blame UC for that. So I have ordered WOO this evening, and I'm going to try it for that, I'm also thinking it might work directly diluted with water as a mouth wash to help with oral lichen planus....I'm just unsure of the dosage to try for my mouth....any thoughts would be appreciated.
Posted 4/15/2014 12:01 PM (GMT 0)
I would start with only a drop in water, it really burns! I started to develop a canker sore in my mouth over the weekend and have been swishing the WOO/water in my mouth and it is totally gone in 3 days. I hope it helps you too. I am using 4 drops twice a day.
Posted 4/15/2014 2:45 PM (GMT 0)
Thanks a lot, I will try just one drop in water..I wish I had it now to use, as my gums are very swollen.
Posted 4/15/2014 2:52 PM (GMT 0)
Someone on here puts about 3-5 drops in a bit of water (about the same amount of water as a cap full of mouthwash) then swishes it around constantly for about 5 minutes. I forget the person... was a post from a few months ago.
Posted 4/15/2014 3:56 PM (GMT 0)
Thanks CM I will do that.

I'm glad to read of your success with this product.

I think I'm in remission with UC, so my plan is to use this product to test it on Lichen Planus, and Oral Lichen Planus, in much the same way you have tested it for your UC, when I next have a major flare, because judging by the responses to WOO for UC, there is a possibility it may just work for Lichen Planus...and if it works for me, I can then pass on this information to other sufferers, as there is not much out there that brings relief to people with this condition.
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