Wheat sensitivity confusion

From what I understand the celiac blood test will tell if you have certain markers but only a biopsy will give a definite diagnosis. There is also a gene test but it will only tell you if you have a predisposition for celiac not if you currently have it.

There are also sensitivities to gluten that is different than celiac. There is a stool test by enterolab that claims to detect sensitivities.

It can take a long time for symptoms to subside after eliminating gluten. Months.

I believe my last flare may have been triggered by adding gluten back into my diet. This occurrence actually led to my UC diagnosis. It actually took me a year to improve. It wasn't until I got on the right medications that my symptoms improved.

I would keep gluten out of your diet since you suspect it but also maybe your doctor would do the blood test since it is still currently in your system. Also maybe you could up you meds in some way maybe colocort enema. Good luck in your recovery.

There is virtually zero systemic absorption of steroid from Cortifoam, whereas if you can retain a Colocort (aka Cortenema) for ~1-2 hrs the systemic absorption is estimated to be the rough equivalent of a 10 mg dose of prednisone. The difference in effectiveness between the two for me was like night and day.

Can I ask what you mean by "getting stable for surgery"?

@Pluot, at least have normal, or almost normal stools. Better formed at least. I'm having eye surgery on the 26th and I don't need anymore pain somewhere else.
But I don't know if I can go on any steroids right now because of surgery. Crap.
Hm. Maybe just keeping to a gluten/wheat free diet, continue with psyllium, up my dose and let things heal might help me out of it at least.

@UCandMe, No scaring here. Thank you for the help.

I was the same. Ate it everyday without issue, Ima.

If I do get worse, should I consider adding something else? I know steroid's are hard on the system when you've had trauma, so that might be out. What about just cortiform?
I'll be talking with my GP a day before the surgery, see what I can do.

Agh eye surgery. Gotcha.

I went without substitute for bread for years doing the entire grain-free thing (and the gluten-free stuff tasted like crap and had other ingredients that weren't good either). But after a long while I tried Udi's bread. yum! I can have decaf coffee and a slice of toast with butter. Life is good.

I do think being grain-free for a loooong while was very beneficial for me. YMMV.

Sibby,

The gluten tests out there really aren't reliable, as they test for allergy vs. intolerance.
Your best bet is what Ima suggested - elimination diet.
Just bear in mind that it probably isn't just wheat, gluten is in ALOT of other things, including sauces, dressing, mustard, ketchup, beer, broths, among many other things too.

http://www.webmd.com/diet/features/hidden-sources-of-gluten

http://www.practicalgastro.com/pdf/September08/HlywiakArticle.pdf

BTW, my GI tested me and also did a biopsy and told me I have no problem with gluten - but guess what, I have major problems with gluten.

Hope this helps.

Soystud,

When I had my diagnosing colonoscopy, they did an endoscopy too and took some biopsies looking for celiac.
That result turned out to be negative for celiac. And my GI couldn't explain the difference between gluten allergy and intolerance to me. My body knows that it doesn't like gluten and I do react to it though.

The gluten blood testing was separate, and turned out negative too. It was not done by the GI, but rather at my insistence by my GP. And I'm sorry to say that I can't remember the name of the test.

@Inso, I only use Ketchup. I don't use a lot. But it's gluten free, thank god. I just had cravings for it.

@Lodi, Thanks! I did some research and it makes sense to what is happening.

I've never had a gluten test. Or celiac test. Last time I did an allergy test, the doc said I was not allergic to anything...until after I got home, washed off the testing material from my arms and then developed a huge rash.

I've had something similar to this happen before, but not quite like this. It hasn't lasted this long, nor has it been this liquidy for so long either. Should I be worried? I'm just curious because typically my issue has improved, and my BM's can resemble something at least. IDK, I'm just worried. I don't know if I can call it a flare if I'm not going everyday, multiple times. It just seems so odd.
But yes, I will stay away from the gluten.