Posted 12/26/2013 12:46 AM (GMT 0)
I started remicade back in August for ulcerative colitis after a flare up that put me in the hospital.. After my week in the hospital the blood in my stool stopped, my stool got almost back to normal/solid, but i was also taking prednisone for the following month. I've felt great up until this past week and i even got my last infusion 5 days ago but there has been blood in my stool again and have been going to the bathroom more frequently. I'm concerned that the remicade is no longer going to work, it has started this way before with asacol, worked great then slowly got worse and worse.
It has been such an awful year up until taking remicade that i unfortunately have neglected my health as far as my diet goes and have probably gone out and had drinks more then i should (are we never supposed to have fun or enjoy food again if we have colitis?) I don't know if that is the reason, maybe i just need to get completely back to dairy free, gluten free, alcohol free and will be fine.
Question is, anyone taken remicade and had it wear off but changed up something else to have it start working again??
My next option is basically to have my colon removed, i don't want to do that and i don't want to take prednisone again, finally got rid of the acne it causes..