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Remicade vs virus

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Ulcerative Colitis
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Posted 12/29/2013 4:09 PM (GMT 0)
Hi all, Happy New Year

I had my first remicade infusion on December 11. All went great! I even noticed an improvement after the first 3 or 4 days. I was due for my second infusion on December 27. Unfortunately, on December 26 I got a really bad stomach bug. I've never thrown up so often:(

So they moved my second appointment to tomorrow. My only worry is that I'm still not feeling very good. I'm no longer vomiting but I'm struggling to eat and have very bad indigestion.

I still have bad diarrhea, which, surprisingly, hasn't been a huge symptom in a while (pain, heavy bleeding)

I have no fever. I'm assuming I've kicked my UC into high gear and that my poor stomach hasn't yet recovered from the strain. Do you think I'm ok to have my next loading dose? I hate to keep delaying especially since it seemed to help.

Paula
Posted 12/29/2013 4:20 PM (GMT 0)
the stomach bug could make your UC worse so if it were me, i'd get the infusion.

but it might be hard to sit there when you wanna barf the whole time. can you get zofran or prilosec? i usually got a bag of fluids at my infusion along with remicade. maybe that will help with all the diarrhea you are having?

i honestly haven't had a stomach bug (geez, i can't remember when) since i was a kid probably. i'm sorry you feel so miserable.
Posted 12/29/2013 4:28 PM (GMT 0)
I haven't had a bug since I was a kid too. At least I can honestly say that pooping is better then barfing!! Terrible.

She did give me a bag of fluids the last time. Hopefully I can have that again.

thanks!
Posted 12/29/2013 4:50 PM (GMT 0)
i had that happen once - and had to delay by about two weeks, then when I went in the nurse asked me if I had recently been ill with anything and I said I am just getting over it. She refused to give me the infusion until I had a doctor say it was ok... I was lucky and there was a doctor in the same clinic that came in. He said it would be fine.

Maybe make an appointment with your family GI first to ensure that all is OK for the treatment. Might avoid another possible delay this way.

The nurse explained to me after, that even though they know how bad we feel when not on remicade, if anything ever happened in a negative way she would be responsible.
Posted 12/29/2013 5:32 PM (GMT 0)
Unfortunately my appointment is tomorrow at 9am.
I guess I will go and let them decide if I should get it or not.
The problem with delaying is that it's my loading dose number 2. This clinic is very busy and I keep booking time off work when I reschedule, so hopefully I will feel better tomorrow:( I hope they have a doctor available to check me out if needed.

thanks:)
Posted 12/29/2013 8:18 PM (GMT 0)
I've been told having a cold or flu doesn't matter when getting your scheduled remi dose. good luck tomorrow
Posted 12/29/2013 8:37 PM (GMT 0)
Thanks for the luck:)
They wouldn't let me have it when I was really sick. I don't know if it was the fever or the vomiting that was the problem. She said it could be dangerous...that's why it was rescheduled. I'm feeling much better this afternoon so hopefully all will be well:)
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