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Ulcerative Colitis
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Posted 12/31/2013 7:58 AM (GMT 0)
Feeling pretty depressed tonight.
2am and Im up crying again.

Havent been able to fall asleep, but im tired and weak.

Acquired 10mg of generic bentyl I took before hopping into bed. Been up three times to go diarrhea since then... with pain, gas and cramping. Also butt dry heaves. Pretty sure it did nothing.

My poor hemmies and fissure are so sore. Lower back and sacral pain is pretty bad... ice pack on that area now to try to numb it.

Feeling generally terrible. Stomach and guts pain. Back pain. Headache. Depressed. Can't fall asleep feeling like this! Can't feel better without getting some darn sleep!

Paperwork turned in for insurance. Fingers crossed it processes quick.
Need to get into a GI asap. Ready for some immune suppressants. I can't feel like this much longer!
Posted 12/31/2013 8:18 AM (GMT 0)
I'm sorry Katie:( Are u still at 60 mg? or50? Thinking don't taper too fast.

Also I think a sleep aid could really help. I occasionally take half a generic ambien to fall asleep on prednisone.
Posted 12/31/2013 8:26 AM (GMT 0)
So sorry embers, I woke up at 1 and have been unable to fall asleep myself, I pray your insurance gets processed quickly also, have you tried reading to get your mind off things and help you fall asleep? Im at my gfs house and failed to bring my book with me when I knew I should have, about to go rumiging thru her books to try and find something.. keep your head up high dont let this get the best of you, you are tougher than this good for nothing disease!!
Posted 12/31/2013 8:46 AM (GMT 0)
Wait aren't you on pred? This is really strange that you should experience symptoms this severe while on pred.
Have you been thoroughly tested for GI infections? And i don't mean your standard hospital test. I mean the private lab ones like Metametrix or DiagnosTech
Posted 12/31/2013 10:35 AM (GMT 0)
Katie I hope you get better soon. I'm glad you're willing to try immune suppressants. It helped me a great deal.
Posted 12/31/2013 1:32 PM (GMT 0)
Ugg. I'm so sorry...and feel your pain. Everyone says how you will be fine and carry on blah blah blah, but when its been do long and you are in the thick of it there is only so much you can take physically and mentally. Try downloading a sleep hypnosis track...sometimes they help me GET to sleep...though of course I wake up soon, but its better than no sleep. Aromatherapy? Have someone rub your belly clockwise. None of this things work long but it can calm you a bit. Though if you are like me after you do it a few times it starts losing g effect....but um easily distracted. Oh! Epsom salt bath helps me for a little bit too.
Posted 12/31/2013 2:36 PM (GMT 0)
Conquer - prednisone has never worked for me to reduce symptoms. :(

I am doing a quick taper but I think it may have been something I ate. After a ridiculous poo a couple hours ago, I slept like an angel.

Back to the food journal!

Ctech- my favorite distraction is planning for the Zombie Apocalypse ... always helps me get to sleep when laying in the dark, lol.

Also, I have a prescription for trazidone... maybe I should take those for sleep. They didnt really help when I first got them 8-9 months ago... but maybe now they will. Another pill down the hatch!

Thanks for the support guys! Was really rough last night. And this morning ive got fresh ice packs on tummy and lower back. Really really feeling the fissure/hemmies hurting. Even my Calmoseptine hasn't numbed the area up :(

Going to the grocery store today! Hoping 2014 brings remission!
Posted 12/31/2013 4:43 PM (GMT 0)
I am hoping your insurance gets processed quickly so you can get into a GI and formulate a path to remission :) I am really sorry you were up all night, that's the worst!!
Posted 12/31/2013 7:53 PM (GMT 0)
Got to nap all day though so I have a bit more energy now for work. :)

Have not eaten... when im feeling bad I usually avoid eating all day so that ibdont have to hurt at work. I know this isn't good.

Any suggestions? Maybe something small a couple times a day?
My food plan is to stay completely away from process and grease.
I can't feel like I felt last night too many more times before I flip out.

Getting some grass fed beef today. And natural chicken. Going to try to eat very simple. And continue with metemucil in an Activia once or twice a day.
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