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my remission was short lived :( so sad!!

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Ulcerative Colitis
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Posted 1/30/2014 12:26 PM (GMT 0)
i was in remission since last April but this week i started seeing more symptoms. i started remicade last april and was also on imuran. my GI decided since everything was looking great and i had no symptoms i could stop my imuran in december. these last few weeks ive been alot more gasy and yesturday i saw a bit of blood and i have been going to the bathroom alot more and i get the cramping. my stool is still formed so thats a good thing but i hate seeing the blood. i called my GI and im not seeing her till the 12th of feb so hopefully in the meantime it doesnt get to a full on flare. i had stopped taking my enemas every night so i will start doing that again and hopefully it will kick it in the butt!! sorry for the vent it is just fustrating!!
Posted 1/30/2014 2:24 PM (GMT 0)
Do you still have some left over Imuran? I would get back on it. Call your GI and ask him if you can start it again. I would not wait and risk a full blown flare.

Get better soon.
Posted 1/30/2014 5:09 PM (GMT 0)
i wish i had some. i have the allopurinol i have to take with the imuran but no imuran. i could maybe try to see my family doctor maybe she would prescribe them. i dont know. i took enemas the last couple of night and the symptoms are not that bad im just scared they are going to get worse.
Posted 1/30/2014 5:15 PM (GMT 0)
Sorry to hear that-- Maybe try a quick 2 week burst of prednisone-- since you have not been on it (?) recently, a quick burst without any long term need should be a safe option, and if it comes back after tapering fast, then you can maybe find a level that keeps your symptoms at bay while the Imuran kicks back in, which shouldn't take nearly as long as the normal 2-4 months or whatever,since you haven't been off that long. Best of luck.
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