Posted 1/31/2014 3:43 PM (GMT 0)
Hi everyone,
A while ago I posted a question about oral manifestations. Well I found out I do in fact have Pyostomatis Vegetans. It's actually kind of interesting because it is an extremely rare oral manifestation of UC. So that was kind of neat because it wasn't causing too much discomfort and is treatable with good old steroids in a rinse form. I think my pictures of my mouth could actually end up in a publication some day. woohoo. Sad what we get a kick out of after dealing with UC and all of its complications.
So I am back to the surgery rout. Hopefully in May. Still nervous though, partially because I always wonder if I am bad enough? Gas has really become a problem for me in the past year. It wakes me up throughout the night when I roll over on my side, and it is always accompanied by mucus and blood. However, I can't believe I don't get pain from it - there is so much, just discomfort from the pressure. I haven't had an accident in a while either. I guess I just want some closure - no blood, no cancer worries, less doctor visits. Hopefully that will be my outcome.
I do have a new concern - go figure. I am also sick of people treating me like a fixated hypochodriac. I thinkd I might have a prolapsed something - either rectum or uterus. I notice a bulge portruding where it shouldn't be, and it is quite large after a bowel movement, like an air filled balloon. I hope I havent' done irreversable damage to my anus recrtum that would affect the outcome of my surgery. I almost went through with the j pouch 2 years ago an I am wooried that I will regret that I didn't.
Sorry to ramble, but you really are the only people who get it. Hope everyone is hanging in there.