Time Frame For Alternatives To Remicade Coming Out?

Thoreau said...


My main worries, which I have gone over before, are:
1. Not being able to hold in a bm for a long time.
2. Having issues with water absorption.
3. Any other possible things that the colon helps with not being able to be done once it's gone.

1. How many people with UC (non-constipated UC issues,some suffer from constipation) can hold a bm a long time? Probably not very many, especially people with severe UC.

2. I'm a novice of only a few months but I'd expect that is when most people would suffer water absorption issues.... this has never happened to me, yes I am more thirsty that I used to be but nothing serious or inconvenient.

3. Yes it is good to have a healthy colon but all of us with UC do not have healthy colons, it took me a long time to come to terms with this. I am healthier without a colon then with a diseased colon and medications.

1. How many times do you urinate in a day? Because often times I don't know that my pouch needs emptying and I go to urinate and my pouch empties at the same time. Emptying a jpouch is as quick as urinating; you don't sit on the toilet for a period of time; like one does with a colon.

2. You can still drink tea. I drink coffee; I don't have hydration challenges/issues.

3. I can pass gas and the best part? It's mostly silent and odorless!

Sue

Having 6 bowel movements with a j pouch and being healthy is WAY different than having 6 bowel moventments with a UC riddled colon. I've experienced both and I'm here to tell you I'll take the j pouch poop over the UC poop any day! :)

ByeByeUC said...
Having 6 bowel movements with a j pouch and being healthy is WAY different than having 6 bowel moventments with a UC riddled colon. I've experienced both and I'm here to tell you I'll take the j pouch poop over the UC poop any day! :)

I don't doubt this at all! I am just in complete remission on Remicade, on the lowest dose. When I take my pain pills I am essentially 95%, sometimes 100%. But the pains are guaranteed every morning without fail. Resting makes them less severe, stress makes them worse.

Thoreau said...

ByeByeUC said...
Having 6 bowel movements with a j pouch and being healthy is WAY different than having 6 bowel moventments with a UC riddled colon. I've experienced both and I'm here to tell you I'll take the j pouch poop over the UC poop any day! :)

I don't doubt this at all! I am just in complete remission on Remicade, on the lowest dose. When I take my pain pills I am essentially 95%, sometimes 100%. But the pains are guaranteed every morning without fail. Resting makes them less severe, stress makes them worse.

Good to hear you are in remission. I never knew what that was like!