I know u all r here for me, but I still feel alone

Hi Linda,
So sorry you are feeling alone. This disease can be very isolating...in fact, sometimes even close family have a hard time really understanding it. That said...is there a support group in your area? I know there have been mixed reviews but it might be worth a shot.

I really hope that the scope goes well and you can get some answers and some relief. You sure have been through the ringer and having a cold on top of things does not make it easier.

So just want to give you a Healingwell hug and I'm sure lots here will write in to support you!
B

Sorry miracles. I hate seeing nice people suffer and feel like they are at the end of their rope. Your neighbor knows where he is taking you so I'm sure he knows farting and worse goes with the territory with that kind of thing. He'll probably just laugh it off if you have to anyway.

Yea way to look at the positives, more trees than people s definitely a plus in my book:)

I love you all thanks!!!!!

Wish I had healing words, but you are not alone. Your post brought a tear to my eye, so your pain is not solo. Hope the prep is easy- clean 'er all out and put fresh stuff in tomorrow. My d just did one last week, and the bleeding from the biopsies was a bit more than planned, but the prep is the hard part. Perhaps this will help the docs give you a fine management plan. Hugs,

After my first liter I'm only going liquid, no stool just yellow liquid.

but prior to this I was pooping every 3 hrs for weeks WITHOUT the prep that's why I'm going in for the scope, I'm having a lot of diarrhea .

Can I have orange jello now? They said not red or purple

I know that feeling of being alone. The last flare I had, before surgery, lasted 2.5 years. It was before the dawn of the internet so there was no online sharing. I lived alone; my friends had pretty much given up on me because I couldn't keep social commitments, and all I did was work and sleep. My family lived far away and were not around. Those were very dark days. Here's to hoping yours will improve soon.

Sue

This is a very isolating disease that's for sure. Even if you have someone by your side, it doesn't help much because they just don't understand. Heck, I've been married for almost 25 years and while my hubby is a good man and he tries...he really does, he will never understand. Too bad you didn't live just 2 hours south, I could be your IBD buddy! :)

Good luck with your scope.

I know exactly how you feel. I am always very alone too. I don't have any family and I have very few friends. This illness is also very isolating, sometimes i feel chained to the toilet bowl. I Had a scope today and prepped yesterday, I wasn't able to drink all the prep. things were running clear before that anyway but I am sure they weren't happy with my level of preparation. Good luck tomorrow. I hope you get good results.

I would say no to the jello it dies the inside and makes it hard to see things. Or at least I think that, I have no idea if it is true!!!

I feel for you. I have a teen daughter but other than that I am alone! It sucks!

Be kind to yourself and thankfully you have a nice guy next door.

Xoxoxo

Miracles,

I've been where you're at, many times.

I know the Remicade hasn't worked as well as you wanted it to. I hope you can choose to look at this with a good amount of self love. You are doing what is recommended. You are really trying to help yourself. You will continue to make choices that help you get your quality of life back... and eventually you are going to be healed up one way or another. Keep that vision of yourself in your mind so you realize that the crudiness of a UC flare does get overcome.

Most of us have been there, have felt countless tears roll down our faces, have been curled over in pain and felt overwhelmed at how to survive in such a state. Better days lie ahead. They might not show up quickly, but slowly if you are patient you will see things getting better.

My parents have witnessed countless flares of mine, and the struggles I have faced. My mom is always the one to remind me of how I always pull through... and to be patient.

Regarding "meeting a man", I struggled a looooong time to feel right with dating and UC. I was single from 18-26 years old without any girlfriend. I finally started pushing myself out there, doing online dating, meeting friends of friends etc... There were a lot of tough times and trial and errors, but as I learned to be myself and not try to hide my body issues I became very attractive to a number of women. I met my fiancee fall of 2012, and am getting married in just a couple months. I do not for one second take her for granted. I will forever remember the hardships I have faced alone and what a blessing it is to have someone to go through life with.

Anyways, you have both my sympathies and my support. Life may be very difficult right now, but things will get better. Also, usually there are brief moments of respite even in the roughest of times. Try to find a few of those moments to just enjoy those trees and places with less people! ;-)

Good luck.

Good luck today Linda :)

miracles...you've been through so much over the many years. Your determination is tenfold.

It's great you have your neighbour to take you for your scope. Hope the prep did its job thoroughly.

Let us know how the scope went.

You're definitely not alone here....
q