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Ulcerative Colitis
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Posted 3/3/2014 2:04 AM (GMT 0)
Hello, just checking in. I don't want to be the one who disappears when feeling better lol, I've just been insane busy...IEP season at work.

Down to 10mg pred and doing....ok. A little crampy and umm...loose the last day or two, but there are other factors going on...like some junk food eating....so hoping its not the cut in prednisone.

Waiting for an ice storm tomorrow....will winter never end?! Well...makes for a good excuse to stay home and do paperwork, snuggle with kiddos.

How is everybody getting along? There are a few of you here I'm really about to go searching for updates on....
Posted 3/3/2014 2:34 AM (GMT 0)
hey Mars!
I'm c.diff-ing it up like a mofo!

Im at double vanco (250mgx4xday) and still in pain and pooping every hour! (was at reg dose for a week with no improvement.)
Blood comes in the evening. D and mucous all day. And foamy gas poops have returns! wooo!

Still on prednisone for no reason. And now on no Mesalamine. Lialda was increasing urgency.
Got a GI. and my Insurance in amazing now. Just need someone to actually DO something to help me. I think I'll end up in the hospital before anyone realizes I'm ACTUALLY sick and need ACTION. I've lost 40+ lbs now so far.

My mood has been going to crap too. But seeing your name on the forum made me smile!
So glad you are feeling well still! Prednisone taper is a *****. Some people it takes FOREVER for them to get off of it. I hope you have good luck!! :)
Posted 3/3/2014 3:47 AM (GMT 0)
I noticed you were absent and figured you were finally feeling good and living/working again, yay!

I'm doing really well. Having big solid poops like a champ! Lol. My dr even decreased my asacol, and I've noticed some increase in cramping which may or may not be related. Right now for me a "bad day" is having 4-5 solid BMs, but it's maybe only like that once a week and the other days are 1-3 solid BMs, I feel like a regular person those days smilewinkgrin I have a GI appointment this week where I will find out the results of my last biopsies, hopefully showing a conclusive diagnosis. I will be updating on that as soon as I hear.

Nice to hear from you. Hope you can taper off that last bit of pred soon. Has the pred been bad for you? I've thankfully not had to go on it (responded really well to butt meds).
Posted 3/3/2014 4:00 AM (GMT 0)
happy to hear you're doing well. I think those lower doses of pred are a bit rocky for most people but you have to think positive and try to keep thinking positive. what are you taking for maintenance?

as for me, i am up and down. I have a lot of days that are okay but I still have a lot of really bad days where i feel like i am chained to the toilet and I have extreme urgency and pain. I also can't seem to retain anything because every time i use a rectal it makes me have to go to the bathroom 15 minutes later. I don't know if it's just bad luck/timing or if it's the inflammation triggering the need to go. really frustrating.
Posted 3/3/2014 2:56 PM (GMT 0)
embers- Oh no!! I was so hoping to find you well! That sucks so bad! And that vanco is rough stuff! I hope it does something for you soon....it worked pretty quick for me. I'm sorry no one is helping you....As wonky as my GI sometimes seems, I guess I got lucky with a system that acted really fast. It's so frustrating to hear about so many people just kind of pushed aside. : ( It can't help but affect your mood...you've been ill for months...I don't know how you did it so long!

Toomuch- I'm glad you are doing good! Yay for feeling normal!!! But then if you are like me, when you have a day that reminds you it makes you really mad lol! It's like oh yeah, i have this, er, *****y disease. I'll take it though compared to where we were. The pred hasn't been as bad as some people ha e had it....just made me so hungry and put weight on belly...which are both issues for me already....I've always been skinny with my weight in my belly and face...this males it worse lol!

notsosickly- Lialda for maintence....I was initially worried I was reacting to it, but then suddenly things turned around so I'm still on it. so far so good. I'm hoping since I only was on 20mg pred to start it wont be so bad...they took a month to move me from 20 to 10 to play it safe, and I haven't had any trouble until I reached 10. I still can live life fine and its not crazy interfering symptoms, I just worry where it may lead. Sorry you are having so much trouble...I've never been able to maintain anything rectally! Ever!
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