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How does remission happen for you?

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Ulcerative Colitis
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Posted 3/15/2014 11:30 PM (GMT 0)
I'm just wondering how people usually go into remission. What symptoms are usually the last to go? Things have been slowing down for me a lot, only going a couple times a day. Still have a tiny bit of bleeding though and mucous/pus seems to be increasing. Today I've hardly gone at all, and wondering if I'm heading towards constipation? Is that normal? Just wondering how most people transition from a flare to remission. I've never been this close to remission so this is new to me!
Posted 3/16/2014 12:32 AM (GMT 0)
My own experience was that my flare began and ended with constipation. And I've read from many others on here that they have had the same experience - though of course not everyone. So yes this may really be part of your transition from flare to remission.
Posted 3/16/2014 12:45 AM (GMT 0)
As far as I can tell, they begin and end with:
Constipation
Loud noises from belly with no release of gas
Mucus and/or pus, sometimes in balls (I call them assteroids) SO GROSS

I guess I define a flare by the presence of blood and pain.

I have also noticed that for a week or two before a flare begins, I have really bad joint pain.

What amazes me is that one day I can be in the bathroom two dozen times, and the next day it's over.
Posted 3/16/2014 1:12 AM (GMT 0)
My remission came soooo slowly. When the first day came that I had no BM it somewhat alarmed me because "normal" was 3-4 (many more on bad days), always in the morning. But the pre-remission stage was also good as urgency slowly went away.

In the past 12 months I've finally identified what symptoms are IBS which are my only symptoms now. Certain foods and drinks can bring IBS on with multiple BM's. If cut out my 2 half-caffs in the morning my BM's would be 1 not 2. I adjust as needed for my schedule and when I have to leave the house with no worries.

Bleeding has not been around for 2 years, since I really cut back on insoluble fiber and of course going gluten-free made the biggest impact. I had popcorn this week for the first time in 5 years (or more) and no bleeding, yay. No gluten has been added back however, I don't need it or crave it.

Be patient as long as you are seeing improvement. If you have no improvement don't be patient, make changes.
Posted 3/16/2014 1:37 AM (GMT 0)
Blood went away first, then mucus, then stools firmed up and decreased in frequency...and for me...urgency went away last. When I can pass gas without fear...I'm going good!

(gotta love the topics on an IBD board) :)
Posted 3/16/2014 2:15 AM (GMT 0)
I basically have to just smack down inflammation quickly to get into remission. So, topical steroids work well.
Posted 3/16/2014 6:54 AM (GMT 0)
I am finally feeling better since my flare up that began a couple months ago. My symptoms have reduced. First I was going less, seeing less blood, then I could pass gas (Horay!) now it's starting to form and I have a lot less cramping. I do still have urgency. Hopefully that goes away soon because i am sick of running to get to the bowl.
Posted 3/16/2014 12:17 PM (GMT 0)
Thanks for sharing your experiences. Shortly after I wrote this post last night I finally went, and it was soft bm with a big gob of blood, so I'm definitely not there yet, I am seeing lots of improvement though. I think I'm gonna be a sloooow remission person, although I really wish I cold wake up one morning and just be done with this! The bleeding was one of the first symptoms to show up for me when my flare began, so I wonder if that means it'll be the last to go. I started off with just proctitis. Interesting that cutting out on insoluble fiber helped you imagardener, I actually find eating lots of green veggies helps with my inflammation , especially spinach. Although I stay away from cabbage and celery. When I was on the low-residue diet my symptoms were horrible! Weird how we all respond so differently to food. I went up to 4.5mg LDN last night so we'll see if that helps speed things along for me!
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