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I've been feeling a bit down...
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Ulcerative Colitis
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Eva Lou
Veteran Member
Joined : Sep 2006
Posts : 3444
Posted 3/27/2014 12:29 PM (GMT 0)
I'll join the party- have been alternating between self-pity & elation for weeks now. It's tough to swallow, the health issues, ongoing, never ending, etc. I don't even know what some of your diagnoses are- but luckily it sounds like nothing super serious! Which *should* make it easier, but it never does. Hang in there, red!
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 3/27/2014 12:35 PM (GMT 0)
Max, thanks :)
Thoreau, you should be a writer...very nice and thought provoking words. Thanks!
Thanks again to everyone. But as the saying goes, the party must end. And I'm in a better frame of mind this morning.
Poppie, you asked if there was something I'm looking forward to? Yesterday I didn't care but today, since I'm feeling better, why yes there is something I'm looking forward to. I'm looking forward to watching my daughter walk across the stage for her high school commencement :)
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 3/27/2014 12:37 PM (GMT 0)
Eva...Lol no not super serious besides the UC and Diverticular disease. However, my skin conditions are very itchy and quite annoying....luckily the flare ups aren't too frequents.
Andreita
Veteran Member
Joined : Aug 2011
Posts : 3844
Posted 3/27/2014 1:12 PM (GMT 0)
Sherry, I'm sorry you're feeling down. A pity party sounds good. Sometimes it's good just to whine. Hugs
jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 3/27/2014 1:34 PM (GMT 0)
Sherry, I can join in. As you know, we share quite a few of those diagnoses. I decided long ago that I'm only going to count the few most troublesome ones, or I'd be totally overwhelmed, sitting in a corner in a fetal position. That would make it really hard to take a swing at your piñata!
Sorry I missed the party, but I hope you're feeling better today.
hateuc
Veteran Member
Joined : Jun 2010
Posts : 2361
Posted 3/27/2014 3:28 PM (GMT 0)
So glad u are feeling better...however if you are having a piñata with rectal meds in it...I am SO there and bringing a big basket for collection..lol.
B
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 3/27/2014 9:50 PM (GMT 0)
Thanks again...it really means a lot to me that you guys "get it". Yesterday was just a bad day all around...we had a storm front moving in and the barometric pressure plays havoc on my body and mind. Since the storm front actually came in today, I am in a much better place today as I knew I would be. It just feels good to have that pity party on occasion ya know?
On a side note, I tend to be very close chested to everything that is wrong with me (except Uc)...even to my husband. Yesterday when I went to the doctors, where she found the enlarged right ovary, they normally print out a summary of the visit. On the summary it shows all the diagnosis of everything they diagnosed. It doesn't show what the other docs diagnosed me with. So my hubby, who works midnights, just happen to find the summary and he told me this morning, "You have a lot of stuff wrong with you" (not being mean or anything just a statement) and I told him "Oh yeah, that's just half of it." When doctors ask me what I have been diagnosed with, I tend to forget everything....perhaps I should write it down.
I'm in pain every single day....some days it's worse then others (like yesterday) so it's not all bad. But I am an eternal optimist and I always look on the bright side of things. And tell myself, this too shall pass.
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 3/27/2014 10:00 PM (GMT 0)
I am sorry sherry. You always come across as the optimist to me too, you're a person that could turn anyone's negativity around. I wish I were that way. It's always difficult when you see all those conditions listed together. every time they show me my medication list I clam up. it's embarrassing going through the list of 30 items. I guess I am lucky that the UC, LPR and migraines are the only things on my list right now but the worst problem I face on a daily basis is probably fatigue :( What do you do about
the ovary situation?
Stef17
Veteran Member
Joined : Feb 2003
Posts : 1811
Posted 3/27/2014 10:45 PM (GMT 0)
I'm late to the "party", but I'm glad you're feeling better today! You're definitely not alone! Keep your chin up! Next time I'll bring the cake! :)
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 3/27/2014 11:21 PM (GMT 0)
Notso, I've been sick a very long time and I read a book about
10 years ago (that Quincy recommended *thanks Q because that turned my life around...no joke!* - tho for the life of me I can't remember what it is!)...but it's basically living in the NOW, not the past, not the future. Enjoy what is happening to you at this very minute...if you are having a good moment, enjoy it. Life is too short to live in the past (even if it was 5 minutes ago). Because of that, I've been able to live my life with the motto, live for the NOW. That is how I remain positive. Of course it helps that I am a positive person in general but the principle is the same even if someone tends to be on the negative side. As for the ovary...for right now I get an ultrasound. I can already tell that my cyst isn't as nearly as big as my last one but I can still tell it's there. So I know what they're going to say, that they're going to watch it. At least I hope that's the case because laproscopic surgery isn't the greatest LOL
Thanks Stef....btw...hint, hint....I'm partial to Sander's bumpy cake ;)
Beth75
Veteran Member
Joined : Jul 2007
Posts : 2158
Posted 3/27/2014 11:27 PM (GMT 0)
Sending non creepy internet hugs and German chocolate cake. It totally sucks and you have every right to a pity party!
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 3/28/2014 1:12 AM (GMT 0)
Beth, I will take the non creepy internet hug but will pass on the German chocolate cake...the coconut bothers my diverticular pockets! LOL
Judy, btw...how are your hands since your release surgeries? The worst one I had (my pointer) gives me no trouble but since the release on my pinky (which was minor) is giving me grief. I have very little movement in it...I can bend down but not up in the least.
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 3/28/2014 3:17 AM (GMT 0)
I would love the german chocolate cake. I can't get enough sweets these days. Hopefully the cyst doesn't require surgery. it's always something. I personally am just sick of going to doctors in general. Can't I just go a few months without having to go to a dentist or doctor?
Old Hat
Veteran Member
Joined : Feb 2007
Posts : 6012
Posted 3/28/2014 6:20 AM (GMT 0)
Well, I could join your gyn lament because the consult I had a couple months back did not speed me to full recovery from the atrophic problem I "discussed" with you, Quincy, and other members. Some days I see red blood & try not to freak out. Good luck with the u/s! Sorry you have to pursue a cyst again-- blasted buggers. / Old Hat (33 yrs with left-sided UC; presently in remission taking brandname Colazal)
pink1
Veteran Member
Joined : Jul 2010
Posts : 969
Posted 3/28/2014 11:30 PM (GMT 0)
Am I too late to the party?! I had a huge pity party myself yesterday. Saw my GI and basically I'm out of options for the time being. They have no studies I currently qualify for (though they just got approved to be a site to study the one that is a pill. can't think of name jak inhibitor??). They (I met w/ 2 docs, a pa and the head of research) would like me to wait to try Vedilizumab (I never spell that right). So for now I'm only on Colazal…..
And I fell and hurt my foot 6 weeks ago at the gym. X ray showed no break but I am still hobbling around. I see an Ortho on Monday.
I had a good cry yesterday and am a little teeny bit perkier today :)
SoCal UC
New Member
Joined : Jun 2012
Posts : 9
Posted 3/29/2014 2:53 PM (GMT 0)
Thanks for sharing that Thor. I'm inspired.
TheAnswersYouSeek
Veteran Member
Joined : Jan 2013
Posts : 2543
Posted 3/29/2014 5:02 PM (GMT 0)
Im so sorry, Sherry. Constant pain and new dxs suck. ((hug))
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/29/2014 6:43 PM (GMT 0)
Sherry...I haven't been around much lately, being a tad selfish and isolated with no energy to read or comment. So, in effect it's my own pity party.
I know I joke that you should to be a study for doctors in a medical book, but in all seriousness....you should be a study for doctors in a medical book!
Your hard-wired optimism is what gets you through, and it's good you've learned to allow yourself to have the pity parties when they're most needed. It's a way to balance the overwhelming times.
I truly wish I could remember the name of that book. When we start on the upstairs "storage" area next month, I'll go through them all and give you a list of titles.
Regarding the cyst on your ovary...why can surgery not be an option? If it's only one ovary that's affected, the other one will still provide hormones, etc for body functioning. You never know, maybe the removal will help with some of your up and down issues?
I agree with you to make a list of all your health disorders/disease as well as meds, and keep it in your purse. As well, keeping a list at home where everyone knows where it is would be handy "just in case".
You'll always have support, that's a for sure. The sometimes conflict is that we don't suffer or maintain optimism at the same time. Since perspective is pretty much what we have on here, objectivity and subjectivity may not come at a time when we need it the most.
Hang tough, as you always do.
qxx
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