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Colonoscopy in 2 weeks

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Ulcerative Colitis
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Posted 4/14/2014 11:57 AM (GMT 0)
Hi

Keep it up!

I haven't managed to go med free yet. Stopped the steroid sups but have used asacol sup two nights out of four. Blood and mucous with avengence when doing this so I thought I would wait for the date of my colonoscopy and then see. If things happen this fast I dread to think how I am going to be.
Posted 4/14/2014 1:36 PM (GMT 0)
Well, this morning is a little more crampy. Nothing else yet.
Posted 4/14/2014 2:46 PM (GMT 0)
Sounds good so far....
when is the scope exactly?
What prep will you be doing?
q
Posted 4/14/2014 3:51 PM (GMT 0)
Scope is Friday, April 25th. I will be 3 hours from home, in a hotel room, poor hubby! If I can't get off the pot he will have to go to the lobby!
Prep is Dulcolax pills, miralax, and magnesium citrate if needed.

I got extremely sick and dehydrated last time. I've done a lot of reading here and online as to how to do better with this, if possible.
Last time I made myself finish the prep, and it was something different, osmos or something like that?
This time if I am cleaned out, I'm stopping. I'm also going to drink coconut water as part of my fluids, which I have been drinking at home just to know how I do with it.

Cramping eased with second BM this morning which is still fluffy, barely solid, no blood or mucus.
Posted 4/14/2014 3:56 PM (GMT 0)
and I think my abdomen is swelling. Pants are feeling too snug on my waist. I'm not one who lost a ton of weight with whatever I have. I lost some, maybe 10-15 pounds extra weight that I had to spare. Now I'm gaining again.
Posted 4/15/2014 3:57 PM (GMT 0)
UPDATE:

Things are going well. Yesterday, day 5 w/o meds, I had a lot of cramping and 3 BM that we soft and fluffy. Still no mucus or blood. I drank some coconut water in the afternoon and ate a bowl of mashed potatoes at dinner. I was really headachy yesterday.

This morning, day 6 w/o meds, I had a BM that was the pencil thin stuff. I had to do some pushing to get it to move. Yesterday the soft ones sort of fell out without much effort. Some cramping this morning, nothing major. I plan to drink some coconut water again today.

The resistant starch thing is very interesting to me. I think it helps me a lot.

I will update at least once a day. I know there are a couple of you curious as to how this goes...one more thing I am noticing w/o the asacol is I'm getting my "spunk" back. Feel like doing more, way more opinionated than I should be which is my normal self!  :)   

(gotta watch my mouth, it spews stuff out too easily)

Posted 4/15/2014 4:11 PM (GMT 0)
Its interesting to note how you are feeling more like yourself off the meds, (more opinionated) :-)

Keep posting, I find this fascinating!
Posted 4/15/2014 5:17 PM (GMT 0)
I admire you. Its seems like things aren't to bad for you at the moment. You are nearly half way there.
I still haven't got my date. Been doing my rectals every other day but am seeing increasing blood and mucous. When I get my letter I will stop them completely. Surely if I am having blood and muscous while taking the full dose of meds they would see something on the scope. I can't cope mentally at the moment particularly if I get worse.
Posted 4/15/2014 6:24 PM (GMT 0)
Martha I really thought I would be where you are. I'm still waiting for "the other shoe to drop"... I have enough cramping, that something is there. I can't believe how alert I feel off the asacol, if that has anything to do with it. Right now, I don't want to go back on that stuff! But, I will do what the doc orders, within reason, of course.
Posted 4/16/2014 2:25 PM (GMT 0)
Today so far is the same. I had some cramping but it went away, haven't had to poo yet. Every time I cramp up I think, okay this is it, and then it goes away.
Posted 4/16/2014 7:00 PM (GMT 0)
:-)

Can't wait till the scope.....

q
Posted 4/17/2014 8:10 PM (GMT 0)
Just to update, things seem the same. I think stool is different looking, normal for me but not normal. It stays very "fluffy". This afternoon it had a lot of milky-white colored stool intertwined with the light brown color.
Posted 4/17/2014 8:54 PM (GMT 0)
Hi Coffeencake.

Just posted a new thread. Can't believe mine is now only two days away. Never got completely off the meds lol not enough time.

Sounds like things aren't too bad with you at the moment. Well done. Funny colours though.
Posted 4/17/2014 9:01 PM (GMT 0)
Martha, Yay! you are about to have it done. I'm curious what you find out.

Yeah, the white seems odd. It doesn't look like mucos, but it seemed more fluffy than the fluffiness of the stools.

I'm doing great, but I find it all confusing. I'm so ready to have it over with. I woke up at 3 a.m. thinking about doing the prep in a hotel room, 3 hours from home, going over in my head what I need to pack so I have everything. I have a list, but it's going to make me a little crazy 'til it's over!

Posted 4/17/2014 9:25 PM (GMT 0)
Its the waiting that's the worse now I know when mine is I feel a tiny bit better.

Wouldn't like to think I wasn't at home though. Theres nothing like your own bathroom. At least you are in a hotel room and not public toilets.

Making a list is good. Make sure you take extra loo roll, wet wipes etc and maybe air freshener.

I am sure I will speak to you before you go but good luck.

Martha
Posted 4/18/2014 10:08 PM (GMT 0)
UPDATE: still doing the same. Once in awhile I have uncomfortable cramping, nothing extreme. I will update if anything changes, otherwise I'm not going to keep putting this back to page 1. I will be checking in, a couple people I can think of are doing scopes tomorrow, and I like to see how everyone is doing.
Posted 4/21/2014 6:04 PM (GMT 0)
UPDATE:
Today is the 12th day med free. Colonoscopy is this Friday.
I've had more cramping this morning, 1 round of D. The cramping seems to be on both sides, sometimes across the lower ab. Usually it is lower right/left "corners" now it seems to be moving up and back to my actual sides.
I'm doing fine, very anxious to have the scope done and over with and very curious to what the doc will find.
Posted 4/21/2014 6:08 PM (GMT 0)
I'd say the white in the stool is mucus...since you're starting to have a bit more colon activity, it makes sense the mucus would start producing more.

It's understandable that you're anxious for the scope...been a nail-biter since you've been off the meds.

Are you staying awake for the scope? (with meds, of course....) could be one of the best shows you've seen in a while ;-)

q
Posted 4/21/2014 6:30 PM (GMT 0)
I wish I dared to stay awake, I would love to watch and ask questions, but I have this thing about pain ... just really don't like it! :)
Posted 4/21/2014 6:33 PM (GMT 0)
Yeah, my last one was a tad more painful going around the curves because I refused the versed, but I still got the Fentanyl. They can give you more if you need it....It's not that it's without meds..it's more like twilight sleep.

I've been awake for all of them except I did fall asleep during one (which was a few days after I had dislocated my shoulder)...the meds felt sooo good, lol.

q
Posted 4/21/2014 7:32 PM (GMT 0)
I watched all of mine and was asking things a he was doing it. Didn't have sedation because if I did I would need someone to stay overnight with me and that is difficult. Just used the entonox.

Glad things don't seem too bad for you still Coffeencake. Won't be long now
Posted 4/22/2014 3:55 PM (GMT 0)
Well, I'm getting closer to, "the day". I'm very ready. Some slight symptoms showing up, more cramping, looser stools, puffing-bloating up like a balloon in my belly, legs, and feet.
Posted 4/23/2014 4:10 PM (GMT 0)
Update:
Today is day 14 without meds. I can tell they are out of my system. I had D this morning one time with mucusy fluffy flaky looking stuff. My coffee is now going straight through. My coffee is a 4 shot espresso americano, yeah, I know.
Yesterday I started retaining water in my legs and feet. I used to do this. Short story, my electrolites (sp??) were low, so I drank coconut water, put my feet up and whaa laa, felt way better and water retention went way down!
Posted 4/23/2014 5:14 PM (GMT 0)
Good thing the scope is soon...what's the prep you'll be using?

Is the fluid retention a first for you?

How do you know your electrolytes are low....make sure you mention to the doc that it's happening.


q
Posted 4/23/2014 5:22 PM (GMT 0)
Prep is Dulcolax pills, miralax, and magnesium citrate if needed.
I have had fluid retention problems for years. I've had doctors check kidneys, heart, etc. I noticed the retention going away after starting asacol then more so after going on high blood pressure med which has a little diuretic in it. I had toxemia with my first pregnancy, and a lot of retention with second pregnancy. Legs just never were the same after that! :( They can look like tree stumps!
I am saying low electrolytes, going by my last blood work. Sodium, potassium, and chloride were low. I will mention it to doc, hopefully he noticed it, but I won't count on that! ;)
And, they were just barely low. My osmolality ? have no clue what that is, is 1 digit low (260) and my alkphos was 57, within range, but on the lower side.
I tend to diagnose myself, and rarely do I get it right! But, I try.
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