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Finally, Prednisone Zero

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Ulcerative Colitis
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Posted 4/15/2014 5:08 PM (GMT 0)
Just wanted to say that I have finally, after many months, arrived at prednisone zero. I had been stuck at 10-15mg for so long and tapered by 1-2 mg every couple of weeks. Still enduring quite a bit of fatigue as the adrenals wake up. Still not in remission but no better or worse symptom-wise being off the prednisone.

Anyone have tips to help with post prednisone fatigue after a long period of use?
Posted 4/15/2014 6:45 PM (GMT 0)
I took licorice root to help awaken the adrenal gland. Many people have commented on it here, and it seemed to work well for me.
Posted 4/15/2014 7:57 PM (GMT 0)
The fatigue will go away, just wait it out. My body pissed and moaned for a few weeks after the last drop but it adjusted and stopped showing withdrawal. I did a 12-13 month dance with pred. It was hard to get off of for sure.
Posted 4/15/2014 8:23 PM (GMT 0)
The post-Pred fatigue was unreal and lasted for several weeks. Even when the extreme fatigue - being almost literally too tired to walk down a street - lifted, I had lesser fatigue for months afterwards. Other stuff might have contributed to the fatigue, though.

Anyway, I don't get how people stay on Pred for months and months at a time. Does spending 6-12 months tapering off really ensure you don't relapse again for a long time (minimum of a year) afterwards? If so, maybe I should've tried it. I always tapered off rather fast.

But Pred never did much to get me into remission. It was a weird drug in that it would knock an acute flare-up right out for a while, but symptoms would start returning at doses as high as 35mg. Can't see that 10mg would have done anything for me, even if I'd spent 6 months on it.
Posted 4/15/2014 8:39 PM (GMT 0)
I didn't get any real benefit from staying on Prednisone for so long, I believe it happened due to fear of withdrawal and not really ever seeing remission. It finally took me just committing to taper down at a pace that was safe and didn't cause any increase in symptoms.

Will try some licorice root and see how it goes.
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