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How many pred cures have you done?

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Posted 5/13/2014 10:29 PM (GMT 0)
Hi,

Here in France doctors say if you do 2 cures of pred it's a sign you are becoming cortico-dependant and you have to switch to another treatment like imuran for instance, and stop using pred.

I read some people use pred each time they flare, no matter if it's the 2nd or 3rd or 10th time...

So where is the just middle?
Posted 5/13/2014 11:58 PM (GMT 0)
Pred has it's uses but if you are on it for months year after year after year that is too much. Pred never "cures" anyone. All it does in some people is help bring on a remission but in the vast majority of those people the remission will not stick once tapered off, thus the use of maintenance meds. You take both pred and the maintenance med, taper off the pred, and hopefully the maintenance med will keep you in remission. If it doesn't then you need to switch to a new maintenance med and hopefully when the pred is tapered off again the new maintenance med will keep you in remission. Pred will very rarely keep anyone in remission once tapered off with no maintenance med. It only works while you are on it and not when tapered off. My GI won't even usually prescribe prednisone because he knows it won't put anyone in remission by itself. I had to ask him for a course to attempt remission. It didn't give me one once tapered off, even while on a maintenance med.
Posted 5/14/2014 12:13 AM (GMT 0)
I think 'cures' is meant to be 'courses'.

I'm totally with the French doctors on this one. To be fair, there should be some sort of time limit placed: I think after 20 years you can have a 3rd course of Pred for example. But if you're needing a course of Pred every 1-2 years, it ain't working: it just ain't working. #foundthisoutthehardway

PS: To answer the question, I lost count at some point but I reckon at least 10 courses in the space of about 8 years. For the last year and a half before surgery, I was on Pred almost continuously. Must have crammed in about 5 courses' worth in that time alone. On 40mg Pred I was in "remission", but the moment I tapered symptoms began to return. Eventually had to have my colon removed, it was that bad.
Posted 5/14/2014 12:22 AM (GMT 0)
Yeah heard same nonsense. New GI ordered imuran or whatever even after I told her NO.

She must be shocked I am still alive.
Posted 5/14/2014 12:28 AM (GMT 0)
I've had 10-15 in ten years
Posted 5/14/2014 5:07 PM (GMT 0)
Yes I meant courses, sorry :)

I am in my 3rd course, this time it wasn't very effective, and anyway it is quite useless if flares are coming back a few days after we stop pred. My maintenance med isn't very effective neither (5asa).

Let's try some natural treatments before firing up imuran...


I'm trying VSL right now.

Post Edited (jeanloup) : 5/14/2014 5:10:49 PM (GMT-6)

Posted 5/14/2014 11:50 PM (GMT 0)
Almost 10 in last 8 years, and I disagree with that opinion.

There are a LOT of factors on what puts you in flare. Unless you are meticulous to find out the triggers and trying to avoiding those you would not know. That said, not necessary that you will find a trigger every time. Personally speaking, Out of all my flares, I don't know triggers of 2 of those.

What dose Pred should be started, thats another topic of discussion. Some GIs prefer to keep low where as other give you a canon. Although both styles are good, I would prefer higher dosage only because if you keep taking low dose, the response that you get in return is underwhelming and in long run you may end up using good amount of Pred with little effect.

And don't be scared of Imuran. If it is stepped up slowly with liver function before every step up, you should be safe. Its one of the best drugs I used for 6 years.
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