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Ulcerative Colitis
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Posted 6/3/2014 1:11 PM (GMT 0)
So i have been tapering my pred for a while now. Started off at 40g now down to 20g (had two weeks on 25g as i was getting symptoms again). I have had a look on the forum and i know the exhaustion and, achy joints is kinda normal.

I have been feeling soooooooo tired and achy but i have managed to cope with it. Today i feel like i am getting a really sore throat and, i am so thirsty (Thirst could be to do with my diabetes though as sugars are super high on pred).

Is this normal? Feeling kinda flu like sympotms while tapering? I can't wait to get off this bloody tablet! turn
Posted 6/3/2014 1:25 PM (GMT 0)
Everyone is different while coming off of pred. I wouldn't say I had flu like symptoms but I sure did ache all over. I've been on it twice and I promised myself I would never take it again. It never got me symptom free the second time anyway.
Posted 6/3/2014 1:48 PM (GMT 0)
I would consider some of my symptoms to be flu-like while I did my taper down from 50mg. Yes, achy joints and being very tired were two symptoms I dealt with too. Hopefully the sore throat passes in short order and that the rest of your taper goes smoothly.
Posted 6/3/2014 2:34 PM (GMT 0)
Thanks :) Just seemed a bit strange, hopefully its not a cold coming. Don't wanna deal with that too!
Posted 6/3/2014 4:05 PM (GMT 0)
Vickloo - I had experienced tiredness on prednisone as well, and I found that I became less and less tired as my dosage got lower (meaning as I tapered). I am not a doctor or a medical professional, however if I had to take a guess, I would think that your diabetes may have something to do with the tiredness.

Also, one time while I was on pred I came down with a cold and really bad sore throat. I went to the doctors and they advised me to stick with Tylenol Cold & Flu and Neocitran (which actually ended up working for me). My best advice to you would be if your cold symptoms don't seem to let up in the next day or so, to go visit your doctor and remind him how much prednisone you're currently taking, and then ask if there is something that you may take to help get rid of the cold symptoms. Based on my previous experience, they'll likely try to avoid using any antibiotics or strong cold medicine as long as they can.

Hang in there, hope you're feeling better soon!
Posted 6/3/2014 4:33 PM (GMT 0)
How long have you been on pred so far? Are you taking oral or rectal Salofalk? You should be on both. You should be on 4.8 grams oral in your current condition, plus rectal. Prednisone isn't working to put you into remission so you should get off it as soon as possible, especially since it is messing with you blood sugar so badly. Being on it long term at the doses you have been on will be worse than just living with UC.
Posted 6/3/2014 4:54 PM (GMT 0)
Thank you for the advice, i think if it gets worse i will go to the dr's. I've been on pred for about 8 weeks (not including meds in hospital). I'm taking 3g for Salofalk orally, i have been doing quite well 1 BM a day and solid no stomach pains etc. The tiredness is the pred and the blood sugars i think, as i am sooooooooo high at the moment.

I finally got my clinic visit and he wants me off pred ASAP (as do i). Hopefully ill just get through the next few weeks and get off it.
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