newbie

Hi I am new to this forum but not to UC. Have had this condition for about 20 years thankfully with many years of remission and responding to steroids for flare ups. During a 6.5 year remission had almost forgot I had the condition, big mistake it came back 2 years ago and am now not responding to anything. Have tried prednisolone, 6mp, Imuran, so sick and ill after 4 days of treatment NEVER AGAIN. Started Infliximab in Feb no side effects but no benefit so GI doc taking me off it and have to start Humira.  Really nervous heard it really hurts and although didn't have side effects from infliximab concerned about potential side effects.  Being referred to a surgeon too to talk over options. I guess at the moment just feeling confused so many decisions it gets a bit overwhelming.  I am having some pretty good days only a couple of loose bm's and not much pain and some not so good days. Glad I found this forum to talk to people who understand for as much as family and friends want to support they really don't get it. Looking forward to reading posts and making some UC buddies.  

Would you consider trying vedolizumab or even trial drugs before surgery? Theres definitely a few other options out there fore you, but obviously, if your ready to get over this stupid disease go for it! : )

Oh, and welcome to the fourm!

During my remission only asacol. Have tried a couple of diets and for four months the SCD which I was on last year when I had to be hospitalised, not that I blame the diet but I was very ill. Am on pro biotics. I live in Scotland and we don't appear to have access to the same range of new and trial drugs as the USA. I seem to be having a couple of good days not too many bm's and no bleeding and not much pain and a few days really not so good. Still its great to have a place to to talk things over. Having a very positive day. Going for a chest x ray this morning. Thanks everybody for getting back enjoying reading the threads