salofulk or salofalk enemas and manufacturing problems?

Hi fellow uc sufferers,

was finally getting into remission two even three days with no bleeding thanks to salofalk enema and asacol, but the chemist only gave me half my prescription said they'd contact me back when it was in. Three days after running out the bleeding and bloating was returning so I went to the chemist to find out what was going on and apparently there is issues with the manufacturer it is unknown when salofalk will be back was told weeks even maybe months.

Now I have what seems to be clots developing, cramping and depleated energy.

Does anyone out there know whats happening? Are salofalk supposatries any good?
Predifoam makes me bleed heavier for some reason and im slightly scared of trying new things, was given a weeks worth of prednisolone a month ago which didnt help and made me feel rotten, I guess Asacol tablets arent effective enough on their own.
Anyway im optimistic and thankful it could be worse, im lucky really.
Thanks in advance to any replys.

Lottie

Im in Beckenham, Kent, uk. :)

I see you take tumeric too, do you recommend it?

I guess I better ask my doctor for an alternative just fraustrating cos I wouldnt mind waiting if it was a one off thing to last couple of weeks but its the not knowing, I have two prescriptions in two different chemists just hope one of them gets some soon.

Sorry to hear there are supply problems with Salofalk... they are the best! I'm also in the UK. Get an emergency appointment with the GP and ask for a standard Pentasa 1g/100ml enema. They are really commonly available so you should be able to find a pharmacy with it in stock. You'll see it is vastly inferior for a number of reasons but using it twice a day is certainly better than nothing.

I really hope you can turn things around...

If you're in the UK, there are Asacol enemas and Pentasa enemas available. Check with your pharmacy as to the dosages, etc. They should be able to call your doctor and put in a request for an RX for you.

q

Yeah sure Mad Martha,
I take Bulk powders L glutamine, before it I had alot of bleeding I think I had alot of ulcers, glutamine im sure you know repairs fibres and im definitely sure its repaired alot inside me, I have a feeling glutamine, daily green veg juice, Asacol and salofalk was definitely the right way to remission like I said I stopped bleeding until I ran out of salofalk.
I mix it with squash before morning workout (its slightly salty taste so mixing it with juice or squash helps) you can have as much as you want I think I mix it with 3-5 drinks a day, it helps me im sure.

Going off track I know but thought I should let you know I changed my Asacol amout last night I took 4x800mg tablets this morning did the same I find taking 4 tablets instead of 3 seems to be helping so maybe I need to up my asacol dosage and like quincy said (hi quincy and thankyou! ) maybe asacol enemas might help?

Hope the L glutamine helps you Martha, if you were like me and your insides feel angry alot glutamine should help the healing process cause thats what its for.
Xxx