5ASA's and cross-reactivity

Oh my wise fellow UC'ers,

First thank you for reading this. Your time out of the bathroom is precious and limited. I appreciate that.

Second, was on Lialda (along with Rowasa enemas, daily, and Canasa, suppositories, daily) 2 pills, once per day. Started 6/18/14. Within three days I felt like I had enough energy to run a marathon. I had a slight headache, but nothing major. Then, I started getting migraines. Blinding, vomiting type migraines. I tried to ride it out hoping that would go away. It didnt and after 4 weeks, I stopped taking it.

Now my doctor wants me to start Uceris. It took three days for my pharmacy to get it in stock, and Im supposed to start it today. I called and asked my Dr. to put me on Apriso and then I called about Colazol. His nurse called me back to say no to both with the explanation that it is likely that I would have the same reaction.

Right now I have little energy, I feel bloated, I have cramps, and my rectum feels swollen and painful. No blood. Pebbly poops (3-4 times a day).

Did anyone fail with Liadla and have success with another oral 5 ASA? This is the IBD program at Hopkins. I just switched to them from another Dr. that was a complete prick. I dont want to change again, but I'm wondering why he wont give me another trial of 5 ASA's or at least call me back HIMSELF to explain why. Please help.

@Quincy,

I am glad that you brought this to my attention, I was actually diagnosed in November 2013. I need to fix that in my signature. I was breastfeeding and did not want to take medication besides rectal meds. I was on Canasa, but I didnt understand that I needed to use it continuously. I'd get better and stop. Stupid I know, but no one really explained my diagnosis or what to expect. I finally came on here and started researching other places. Then when canasa cured 80% of the problem, I was put on enemas. I tried a few and then gave up. I was still worried about medication transfer to my son, who was very sick with reflux and not gaining weight as expected. Then in March, I felt so awful I started Rowasa enemas nightly. At first, I had horrible explosive D. I thought I was allergic, but my pharmacist told me to keep trying. Eventually the D stopped after a few weeks, and I started feeling better. Then since I was still having symptoms tried Lialda. I hope that explains what was going on. To be honest, I thought I just had rectal bleeding and urgency. I didnt realize how much the inflammation was affecting me until it was gone. Not sure if you know what I mean. Thanks for your reply. You are always helpful!