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Ulcerative Colitis
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Posted 7/29/2014 1:13 PM (GMT 0)

So, had a mild flare up back in several months ago....doc put me on Lialda 3 pills and it worked and I have been fine literally, any blood is gone, BM's normal and no urges to go to the bathroom or any cramping.  So, weaned myself off of the Lialda and have been just fine with no issues at all.  Eat normal again and that includes drinking coffee and eating chocolate but not extreme of course. 

WELL, guess what?  Just started to see a little blood on the TP (sorry for getting too graphic) and wondered if I just strained something.  I still have no urges, bm's still are normal.  Um, so started taking 2 pills again today of the Lialda thinking it may heal whatever is doing that.  I know, I am not a doctor!  LOL  I feel just fine actually.  No cramping at all plus we have a vacation planned in a month. So should I just take the rest of what is in my bottle?  Like I said, weaned myself off of them because my system went back to normal and had no issues at all.  HMM?!  Do not want to miss this scheduled vacation.  Don't go back to the dtr for a while for a checkup.  Your thoughts? TU TU  TU  : )

Posted 7/29/2014 1:17 PM (GMT 0)
Sorry weaning yourself off of you medication is never a good idea. Seeing blood while off of it is more or less confirmation in my mind that you need it. Good thing you nipped it in the bud before it became a full blown uc flareup. You have to take medications for life with uc which is a chronic, lifelong disease. If the medication took care of the blood and gives you normal bms then it is doing exactly what it it is designed to do, stay the course, take the lialdia as prescribed by your doctor, and you'll be able to enjoy your vacation without worry.
Posted 7/29/2014 1:26 PM (GMT 0)
My thoughts are take your Lialda again. Take 3 pills that your doc started you on and when everything settles down take 2 for maintenance. You need to stay on maintence drugs. That's what I have to do. Just out of curiosity how long did it take for your BMs to be normal. I am just out of a flare but am still going 2-3 times in the morning. I am trying physilium to try to reduce frequency and firm things up.
Posted 7/29/2014 1:35 PM (GMT 0)
If I had a dollar for every time someone came on here posting that they took meds, got better, quite meds, and now they are flaring again I would become a millionaire. UC is a lifelong disease. It never lets up but if you do it will come back. I have seen so many people who have gotten better quit their meds thinking that if UC comes back all they have to do is what they did before and they'll get better, only to find out that what worked before won't work again and now they have to take even worse meds than they did before. You should count your lucky stars that Lialda did so well for you. I would immediately start on the same three per day you were on before and hope like hell it works this time. If it does I hope you have learned your lesson to never go off of it again or you might be looking at much harsher meds in your future. I would never, ever go less than 2 Lialda per day, even if you have been in complete remission for 25 years. UC is always waiting in the shadows for you to make a mistake. It will be in those shadows for the rest of your life.
Posted 7/29/2014 2:08 PM (GMT 0)
Thanks all!  : )  Starting back on them today.  I appreciate you being very direct.  LOL 

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