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I'm flaring

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Ulcerative Colitis
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Posted 7/31/2014 12:44 AM (GMT 0)
I'm having diarrhea, wiped blood and I poop mucus/pus.

A new symptom I'm privileged to deal with is joint pain.

I started myself on colocort and I continue the Imuran. GI knows.

I cannot handle this anymore. My bones are brittle already. I don't want to take pred anymore.
Posted 7/31/2014 12:48 AM (GMT 0)
that so sucks A :-( !!!!
Posted 7/31/2014 1:01 AM (GMT 0)
Sorry to hear
Posted 7/31/2014 1:10 AM (GMT 0)
Noooo. I hate this post. I am going to believe you're getting better until there is no hope. I know steroids suck but at least it's topical. Please stick with it and hopefully you don't need it for long.
Posted 7/31/2014 1:10 AM (GMT 0)
Oh, no! RE bones: are you supplementing calcium & vitamin D? / Old Hat (33 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 7/31/2014 3:05 AM (GMT 0)
Crap! I'm sorry to hear this :(
Posted 7/31/2014 12:56 PM (GMT 0)
Old Hat I am. I also got Boniva from my Endocrinologist.

I hope it's just a blip :(
Posted 7/31/2014 12:59 PM (GMT 0)
So sorry Andrina. This disease sucks.
Posted 7/31/2014 1:06 PM (GMT 0)
Andrina, i am so sorry to hear this. I can only imagine how hopeless you feel. We will walk through this with you. You are not alone.

Please keep us updated.
Posted 7/31/2014 1:23 PM (GMT 0)
Hey Andrina -

I am not sure what to say other than to hang in there. ;)

For the bones issue-
-I invite you to research resistance training - lifting small weights does wonders for re-augmenting bones.
-Vitamin K2 will also help direct calcium in the body to where it needs to go.

Best.
Posted 7/31/2014 1:42 PM (GMT 0)
Here's to hoping you a fast road to remission and happiness.
Posted 7/31/2014 8:38 PM (GMT 0)
Sorry you are in a flare. With regard to the bones, my GYNO gave me this website to check out. He is giving it to all his patients that are on medication (Boniva, etc).

www.savemybones.com
Posted 7/31/2014 9:05 PM (GMT 0)
How are you doing today? Better I hope.
Posted 7/31/2014 9:28 PM (GMT 0)
Thank you all for being there.

Guardian, thank you for the tip.

Michel, the website doesn't work?

I've been taking my enemas and today so far so good although I won't say much until a few days have past. I also saw my GP today (the appointment was scheduled already a month ago) and she gave me Voltaren cream for the joint pain. She said it won't mess with my guts.
Posted 7/31/2014 11:30 PM (GMT 0)
voltaren is AMAZING. i have like 4 tubes of that stuff.

i hope it gets under control fast girl!! you still have options left in the way of meds so you're lucky in that sense!
Posted 8/1/2014 2:22 PM (GMT 0)
Argh i sincerely hope it is just a blip.
Please get better! Very soon...
Posted 8/1/2014 3:28 PM (GMT 0)
Still not better
Posted 8/1/2014 7:25 PM (GMT 0)
You're in a tough situation. I sure hope the enemas kick in and allow you to heal quickly.

Can you maybe try 5ASA again? or are you intolerant of them?

q
Posted 8/3/2014 3:17 PM (GMT 0)
q, mesalazines don't do anything for me anymore.

Today I had solid poop but it was covered in mucus still. I'm doing the enemas whenever I sleep so that can be up to 2 times a day. I also do suppositories in between. I just really want to kick this inflammation before it becomes a real bad flare.

In addition I'm on Imuran still and I ordered ccherbal. I hope it comes in the mail soon so I can start myself on it.
Posted 8/3/2014 3:46 PM (GMT 0)
If you're doing steroid enemas and supps up to 3 - 4 times a day...maybe only do that for a few days..then cut back the supps or one of the enemas as to not have a continuing high dosage of the steroid.

The solid poo is a good thing..

q
Posted 8/3/2014 6:27 PM (GMT 0)
I'm so sorry Andrina! The only thing I can suggest is that when I flared bad I had to try to eliminate stress from my life. If that's even possible?!?

Also, I finally found a good GI doctor that truly helped me. Maybe you can find a better doc.

Bland foods help me too. Rice, bread (I'm not gluten intolerant), sorbet pops, banana, applesauce...the BRAT diet.

I hope you feel better Andrina! Blessings. :)
Posted 8/4/2014 1:14 AM (GMT 0)
Gracie, thanks for your advise. However the GI I have right now was able to put me in a one year remission so I'm thinking that he's pretty good and I trust him.

Rice is a total no-go for me. Otherwise I agree with the bland food and that's what I'm trying in addition to everything else.
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