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constant pain without UC symptoms

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Ulcerative Colitis
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Posted 8/10/2014 9:15 PM (GMT 0)
I have had UC for 9 years. I am a 29 year old other wise healthy male. Usually 1-2 flares a year with good results from the steroid to calm them down. Year after year the steroids seem to take a little longer to calm them down. 8 months ago I had a flare and it seemed to not go away. When the blood and 8+ restroom break went away the constant pain just below my ribs all the way across and on the left side going down didnt. I am off of the steriods for about a month noe and I have not any blood stools are less frequent but the pain remains constant! Other treatments that I could try are going to be just too expensive and am close to scheduling a total colon removal. I had a CT scan to see if something else could be causing the pain but nothing showed there. Before I have my colon removed I want to know if something else is causing the pain. Has anyone else had this problem? Can the colon be causing me pain and me not be flaring? Has anyone had a colon removal? Proctocolectomy? I really need some insight and guidance. ..
Posted 8/10/2014 9:26 PM (GMT 0)
Hey Budson -

I think it's a little premature to schedule colon removal if you aren't exhibiting UC pathology (or symptoms). Do you think it could be IBS, reflux, or various food intolerances that are causing the pain? Have you tried eliminating gluten or dairy and seeing if that helps?

Best.
Posted 8/10/2014 9:38 PM (GMT 0)
I started a diet a week ago that excused grains, dairy,... and perservitives. Just meat veggies and fruit. Not helping yet. Bathroom breaks are pretty infrequent as usual. I just hurt all the time!
Posted 8/10/2014 9:46 PM (GMT 0)
I personally don't agree with how they have been treating you all of these years. Did they ever give you any meds other than pred? I also think it is way too soon for surgery. Do they even know that that would stop your pain? You mentioned about the cost of other meds but what is the cost of surgery? Do you have insurance?
Posted 8/10/2014 10:01 PM (GMT 0)
I guess I didn't give the full story. Over the years I have been on pentasa, Asacol HD, Lialda, and a few more I can't remember, and changing when they seem to stop working. Taking tramadol for pain, lialda, multi vitamin now
Posted 8/10/2014 10:02 PM (GMT 0)
Have had a problem with reflux years ago but been fine for a while with that
Posted 8/10/2014 10:14 PM (GMT 0)
When you achieved your remissions did you stay on the meds, other than prednisone?
Posted 8/10/2014 10:17 PM (GMT 0)
Yes, never stopped. I feel and know that I am in remission now but the pain seems to never stop and radiate throughout my gut.
Posted 8/10/2014 11:10 PM (GMT 0)

Budson said...
I started a diet a week ago that excused grains, dairy,... and perservitives. Just meat veggies and fruit. Not helping yet. Bathroom breaks are pretty infrequent as usual. I just hurt all the time!

Do you think it's some food that's causing it? Like does it occur shortly after you eat or is it persistent pain all the time?

Do you eat enough to feel full? Meat, vaggies and fruit seems to be pretty restrictive IMO - it just seems like you aren't eating enough carbs.

Also, hows your sleep schedule? I know it's overused but adequate sleep is important to managing or eliminating the pain.

Best.
Posted 8/11/2014 2:25 AM (GMT 0)
Reflux (GERD) can give you sharp pains under, and at the side of your ribs, aching tummy ache, soreness, sick feeling, and even silent acid reflux, which is when your not even aware of the acid reflux, can give you stomach pains and soreness..if you have had this before it might be worth checking it has not flared up again.
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