Posted 9/1/2014 12:07 AM (GMT 0)
helllo wondering if anyone can provide any advice here i got diagnosed a few years ago w mild proctitis, i was in remission after a month of betneso for around seven months full remission.
I started to flare again with symptoms of urgency, mucous and blood. I've now been in this flare for a YEAR. with varying degrees of blood and mucous throughout, but mainly having mucous. ive tried the 4g enemas, suppos, cortifoam ( didnt do much at all for me).
I have also been on the SCD diet religiously since the day i was diagnosed, i take a tonne of vitamins, i've tried acupuncture and nothing seems to get me fully out of it. I somehow still with every bowel have mucous, or mucous with blood in the mucous no matter what drug im on.
finally my doc prescribed betnesol, I almost came out of the flare when i used betnesol for 2 weeks ( when originally diagnosed betnesol for a month got me into remission) but since mucous was still lingering, within a month blood came back.
I'm now currently going back on betnesol i figured to try for a week since it works pretty fast and now its improved but i still get mucous and it doesnt seem to even be working as fast as the last time a month ago.
anyways im super frustrated i dont know what else to do any thoughts?/ advice? its scares me since ive been diagnosed ive only used betnesol twice and now the third time im using it it doesnt seem to be working as well... has anyone had any luck trying anything else, i cant believe how long this flare has lasted over a year next week...