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Ulcerative Colitis
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Posted 9/3/2014 9:37 PM (GMT 0)
So I started Remi in April and it seemed to help with symptoms while I was loading and seemed to taper off as soon as I was about to get my next loading dose, but as soon as I went to my 6 week schedule it seemed to not help at all. For instances, my July infusion helped me through the following weekend and that was the end of it. But my last infusion about 2 weeks ago led to marked improvement. I started taking VSL#3 about a week prior to my last infusion. Any chance the probiotic is the real cause, or the Remi is just starting to work?

Just wondering if I should give up on Remi or if there is still hope.
Posted 9/3/2014 9:43 PM (GMT 0)
I gave Remi a good 10 month shot. After that I gave up. It helped a little....then some more....then not at all.....then back to a little so yeah, it played games with me too! I didn't have the patience left in me anymore for that kind of inconsistency and toward the end I was flaring pretty badly.

So my answer would be, don't give up yet but have a plan B in mind. The pro biotics could definitely be helping.
Posted 9/3/2014 11:40 PM (GMT 0)
A lot of people don't have results that last throughout the duration of the infusion. Some people go for infusions closer together, some people require a double dose of the medication. It should be giving you relief for the majority of the time, otherwise you need to discuss the options with your GI. It's probably never a bad idea to have a back up plan and a second opinion.
Posted 9/4/2014 12:43 AM (GMT 0)
I wouldn't give up on it but it may not be just a coincidence with the VSL. Have you ever taken it before? Like there may be more than one trigger for IBD, there is often more than one answer for getting it under control.
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