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Is this a flare or something else?

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Ulcerative Colitis
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Posted 9/20/2014 2:01 PM (GMT 0)
Hello everyone!
about two weeks ago, I started feeling nauseous, and had a lack of appetite and then I started having fevers for about 3 days. During all this I also started having a lot more pain in what feels like my lower colon, kind of like a gassy pain. I also started having more blood in my BMs, sometimes it would be almost all blood or mucous because I haven't been eating much. My fevers went away last weekend but I was still having the pain and worse and more frequent BMs.
Then yesterday I got a fever again. I called my GI doctor earlier this week and he says he thinks it was a stomach virus of some sort because I am immune compromised from being on the Vedolizumab. Im not sure about this because my fevers came back randomly again this weekend.

I have just been feeling so tired and weak and sick for the last two weeks and it seems to have come out of nowhere. I haven't been eating much which could contribute to feeling weak, but I just never want to eat. What does this all sound like to you guys?? Could use some insight!!
THanks!!
Lauren
Posted 9/20/2014 2:13 PM (GMT 0)
Definitely a flare. Besides what's in the toilet, I know I'm going into a flare when I have nausea, loss of appetite, on-and-off fevers/sweatiness, and abdominal pain. Have you lost a lot of weight quickly? That usually happens to me, too.

It's probably lasted too long to be a stomach bug even if your immune system is compromised.

If it were me, I'd start aggressively treating this. For me, that's with an increase in curcumin, hydrocortisone enemas, and possibly a burst of Pred but everyone is different.

Hope you feel better soon.
Posted 9/20/2014 2:22 PM (GMT 0)
i agree with the k girl - sounds like a flare going on :-(

i would treat it as such -

good luck - hope you get a handle on it soon -
Posted 9/20/2014 2:37 PM (GMT 0)
You sound like I sounded a couple of weeks ago and mine was related to a flare. In my case, the nausea and loss of appetite was a very bad sign. I thought it was going to be a GI bug but nothing came up in tests. I took some antibiotics and they did seem to help with the symptoms. I hope you're feeling better quickly.
Posted 9/20/2014 4:01 PM (GMT 0)
How long have you been on the Vedolizumab before this stuff started? While it's not impossible, Vedolizumab, for the most part, is colon specific so it is not normally supposed to weaken your whole immune system. That would be true for the other biologics. What other meds are you on? I'm not sure which way to vote right now.
Posted 9/20/2014 5:17 PM (GMT 0)
Right now I am only on Vedolizumab and fish oil and Effexor (anti depressant). I have had three infusions of Vedolizumab so far so been on it a couple months. The only other possibility I could think of that could be causing the fever and symptoms is C Diff but I have never had that so I don't know if it could be that or not.
Thanks for all your input!
Lauren
Posted 9/24/2014 12:59 AM (GMT 0)
Hi LaurenTay! I am so glad you wrote on here! My Dr. thinks I may have some sort of IBS/Colitis. Once and a while out of the blue I get very fatigue where I can sleep on and off all day. My head feels very off balance if that make sence. A feeling like I cant get out of bed because I am so dizzy. This will go on for atleast 3-4 days and then I will wake up the next morning and be fine. I am having other symptoms such as: a change in BM. My BM is very flat and curly like. Almost looks like a brain when all said an done. I have fatigue and lack of appetite sometimes. I am also extremely bloated. Althoug my Primary care Dr. made me do blood work and he found that everything was fine except for my WBC are high. Now does anyone know if a high WBC is a cause because of the inflammation going on in my intestines? I really hope I can get some advice from someone. Because I feel like I am going crazy. MY GI Dr. put me on Dicyclomine 10MG 4x daily
Posted 9/24/2014 1:55 AM (GMT 0)
Britnee: sounds like maybe a reaction to something in your food. When I have had MSG, I feel like I am suffering from severe hangover. Fatigue, nausea, headache, dizziness, usually for a couple of days.
Posted 9/24/2014 2:56 AM (GMT 0)
While we're talking about fevers, does anyone know of anything we can take to relieve this symptom? I know NSAIDS like aleve and tylenol are generally not recommended for IBD, but are there any other medicines we can take to relieve the fevers?
Posted 9/24/2014 3:20 AM (GMT 0)
tylenol is not a nsaid - and is good against fever
Posted 9/24/2014 5:19 AM (GMT 0)
That's excellent news! I will definitely start to take that for the fevers. Yes, the pain is bad and the diarrhea is bad, but the fevers make me feel the worst. Thank you!
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