HealingWell
Search Close Search
☰

No medicine?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/28/2014 1:53 AM (GMT 0)
Does anyone on here not take ANY medicine and is doing fine?
Posted 10/28/2014 2:28 AM (GMT 0)
I am not sure how you couldn't, this disease needs meds to be placed in remission from my experience.
Posted 10/28/2014 2:32 AM (GMT 0)
Inevitably, everyone who tries the "no med" path ends up here wondering how they ended up so bad. No meds may work for a short while if your flares are not severe and stubborn, but over time and for those with more severe and stubborn cases, meds are a base needed for treatment. All the natural stuff should be done IN ADDITION to these.
Posted 10/28/2014 11:36 AM (GMT 0)

You-See said...
I just went to the GI doctor and she wanted to prescribe me lialda but I don't think this is a good idea seeing how I have a history of heart inflation due to a possible side effect of meslamine

22 year old male, diagnosed with severe ulcerative colitis on Jan 7th 2013, still remain in flare.. Discontinued asacol after a hospital stay where they were convinced I had an allergic reaction causing inflammation around the heart muscle.


I am also allergic to mesalamines and need to avoid them. Maybe someone here can recommend a non-mesalamine rectal med for you since rectal meds in general are so effective. You could also look at the resources section to find information about LDN.

Probiotics such as prescription VSL#3DS or the high potency OTC probiotics found in our signatures might help you. There are studies that show psyllium SEED, curcumin, and boswellia can help to maintain remission. Since everyone is different I suggest you look at our signatures to see all the different remedies that each of us use and find those that work with you.

For me individually natural supplements are very effective but they can only work if I also monitor my diet to avoid triggering foods. I suggest keeping a food diary. Gluten and dairy are the usual suspects but any food can trigger problems in some individuals.
Posted 10/28/2014 11:44 AM (GMT 0)
Yes. I know two people personally who are doing well without meds. One who is completely free from 10 years of UC pathology/disease after fecal transplantation and another who is managing through diet/supplementation (see IamCurious' post).

There are some on this forum as well.

The vast majority just don't post here. Those who are in remission (with or without meds) are not likely to post.

Hope this helps.
Posted 10/28/2014 12:04 PM (GMT 0)
If I miss taking medicine for even one day, I see blood, so I'm sticking with the RXs.
Posted 10/28/2014 1:00 PM (GMT 0)
Ulcerative colitis is caused by your immune system attacking the lining of your large intestine which will cause inflammation, diarrhea, and urgency if left untreated. It's not a matter of if, rather a matter of when. Your medicines are either anti-inflammatory or are immunosuppressive which should keep your immune attack and thus your uc under control.

Meslamine-based drugs can cause heart-related allergic reactions, such as inflammation of the heart muscle (myocarditis) or the lining of the heart (pericarditis) in a small percentage of patients. You simply discontinue the medicine, it goes away, and then try something else.

Without melamine as a treatment option, you need an immunosuppressive medication such as 6mp, imuran, or aza. They are a different class of medications and do not have the same side effect.
Posted 10/28/2014 4:12 PM (GMT 0)
After I was first diagnosed I went into remission. I was in my early 20s and not too smart. I went off all my meds. Felt fine for a while (3-6 months?) and then went into a huge, horrible, worse than when I was diagnosed, oh my gosh I'm super sick, flare that lasted at least a year. I also go to have a few extra colonoscopies (tons of fun!).

I was really lucky to get in remission again. I will never go off my meds ever again.

Even if you feel great I would not suggest going of your meds. You should, of course, discuss that with your doctor.
Posted 10/28/2014 4:35 PM (GMT 0)

ColitisGrl said...
After I was first diagnosed I went into remission. I was in my early 20s and not too smart. I went off all my meds. Felt fine for a while (3-6 months?) and then went into a huge, horrible, worse than when I was diagnosed, oh my gosh I'm super sick, flare that lasted at least a year. I also go to have a few extra colonoscopies (tons of fun!).

I was really lucky to get in remission again. I will never go off my meds ever again.

Even if you feel great I would not suggest going of your meds. You should, of course, discuss that with your doctor.

I have to disagree with the "not too smart" part. You're young and you have a disease that you never intended to have. It feels illegitimate and you want to be normal just like everyone else, so the natural course is obviously to go off meds when you are feeling perfectly fine. At least that was my thought process at the time. In hindsight, I would have weaned off my meds rather than completely gone off.
Posted 10/28/2014 6:11 PM (GMT 0)
@Guardian 7- Thanks! You're nicer to the younger me than I am. And you're also right. I was sick of taking meds and just wanted to be normal. My GI had told me to stay on them, but I just stopped them. The older, wiser me wouldn't do that again.
Posted 10/29/2014 10:23 PM (GMT 0)
No meds is only possible for people in deep remission.

Edit: only your GI will decide if you're in a "deep remission" or not, not you.
Posted 10/30/2014 11:51 AM (GMT 0)
uhhhhhhhhhhh.......oh. never mind cool
✚ New Topic ✚ Reply