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Ulcerative Colitis
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Posted 10/28/2014 3:08 PM (GMT 0)
Hey everyone,

It's been a little while since I posted, since I've been in a pretty long remission. (I got diagnosed in July, and was started on Lialda, and have not had any problems until recently. Pretty good run!)

For about the past week I have been having a somewhat mild flare. Basically just some mucous but no blood. Since it was the start of a flare, I started to use my CANASA suppositories again. My GI told me to go ahead and take those whenever I feel a flare coming on, since it's more direct medication than the Lialda.

This hasn't helped. Still having a flare, and it's progressing worse. This morning when I tried to have a BM, there was a lot more blood than there had been. It was darker and looked almost like my period does. I am going to call my doctor once I get out of class, but wanted to know if any of you had any tips for helping to soothe a bad flare.

I'll take anything at this point! cry
Posted 10/28/2014 3:36 PM (GMT 0)
Adding in Canasa is good. How many Lialda tablets are you taking? The maximum is 4,800mgs a day, which is 4 tablets.

If those two are not enough then you might need to consider adding in oral prednisone pills. Either that or a suppository steroid or enema steroid (which would have less side effects than pred).

Your GI might want to do stool tests to make sure there is not a bacteria over growth causing your increased uc-like symptoms (e.g., CDIFF). He/she might want to do a scope to see exactly how bad it is, and how far it goes. Good luck,
Posted 10/28/2014 3:40 PM (GMT 0)

iPoop said...
How many Lialda tablets are you taking?

I'm currently on 2 tablets per day
Posted 10/28/2014 3:43 PM (GMT 0)
Yeah. You need to up the Lialda to 4 pills per day and continue with the Canasa. You may also need enemas or a short pred course. If you get to remission again you need to be aware that what you did before did not keep you in remission so it would be ridiculous to go down the exact same road again. You need to take enough during remisison to stay in remission and not sit around waiting for a flare again and then figure out what you're going to do afterward. You need to be proactive, not reactive.
Posted 10/28/2014 3:52 PM (GMT 0)
First, call your GI. He needs to know what's going on and you might need a change to your prescriptions.

Yes, I recommend that you increase your Lialda dose and switch to mesalamine enemas instead of Canasa.

If that doesn't work, I'd for sure try steroid-based rectal meds before trying oral prednisone.
Posted 10/30/2014 12:52 AM (GMT 0)

garylouisville said...
Yeah. You need to up the Lialda to 4 pills per day and continue with the Canasa. You may also need enemas or a short pred course. If you get to remission again you need to be aware that what you did before did not keep you in remission so it would be ridiculous to go down the exact same road again. You need to take enough during remisison to stay in remission and not sit around waiting for a flare again and then figure out what you're going to do afterward. You need to be proactive, not reactive.

I didn't want to up my Lialda dosage until my doc gave me the go-ahead. After talking to him, I'm taking 4x Lialda daily, 2x Canasa daily, and 1 Uceris daily for 14 days. As for me being proactive, I've had no change in diet or stress lately, but I also suffer from chronic migraine, which have been more frequent lately, so I've been taking Ibuprofen when I get one. Is Ibuprofen known to trigger UC/UP flares? If so, what can I take in the future to help my migraines that won't also make me flare?
Posted 10/30/2014 1:12 AM (GMT 0)
Ibuprofin is a no no.
Posted 10/30/2014 1:32 AM (GMT 0)
I take imitrex plus tylenol plus caffeine when I get a migraine.
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