Cushings Syndrome

I've been on Prednisone for almost 2 months with no relief, even with Canasa, Cortifoam and Apriso. We stopped the Apriso after starting Remicade 2 weeks ago. I have my next infusion this Thursday.

My GI had me start the taper after my first infusion. I'm currently at 20mg and the side effects are getting worse. My face is swelling more, camel hump, rapid heartbeat, high blood pressure. I ended up in the ER on Saturday. When they took my vitals my heart rate was 130. My anxiety is through the roof. They gave me some Ativan which just made me a little sleepy and brought my HR down to 100. EKG was normal and labs were fine. ER DR said Cushings and anxiety and to follow up with dr.

GI said to taper down to 10mg of Pred and increase Cortifoam to twice a day. I hope it helps.

Anyone do the foam more than once per day? What helps you with anxiety?

One positive is that you're down to 20mg and going down to 10mg. The lower the dose, the less side effects you will notice. As for the moon face, mine is still a bit round as well and I am on 5mg so I guess the moonface hangs around for a while. I think we need to get off the evil pred before getting rid of the majority of the side effects. I have an awful attitude in general while I am on prednisone. I have very low tolerance for BS and I am just miserable, I guess it is similar to anxiety, I am very on-edge all of the time. I didn't take anything for that but I did take sleep aids while I was on a high dose. I haven't had as much trouble sleeping since I got under 10mg but I will still take ambien if I have trouble sleeping. I have used cortifoam 2x daily. Not sure if it provided results but it's definitely worth trying. Remicade will hopefully get you in good health and you will get off prednisone in no time. My full course is 2 months too. I am wrapping it up very soon, scared things will get unstable. It's weird because the physical side effects don't seem noticeable until you're on 20mg, for me that's how it happened. I was on 40mg and I was nuts and an insomniac but I didn't have pimples and a fat face. By the time I got to 20mg, I looked like I was on 40mg! What an awful drug.

Oh I also notice that my skin on my hands gets very dry and thin on steroids. Once I come off them, it goes back to normal.

Happychick- the skin across my knuckles on my hands is cracked and so sore. I just told my daughter that my hands look 80 years old.

soy- i straightened those out ;) some days I think he needs the Ativan more than me..