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Humira tomorrow
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Ulcerative Colitis
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Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/9/2014 5:25 AM (GMT 0)
Starting my loading doses of humira tomorrow. Nervous!!!!
malaika
Veteran Member
Joined : Feb 2014
Posts : 524
Posted 12/9/2014 1:02 PM (GMT 0)
Good luck! I was nervous when I started Simponi too but it's actually nothing to be scared about
. The injections hurt more than I was expecting but apart from that it wasn't a big deal, and I saw improvements fairly quickly. Hope this is what finally works for you!
Andreita
Veteran Member
Joined : Aug 2011
Posts : 3844
Posted 12/9/2014 1:26 PM (GMT 0)
I wish you best of luck and I hope you get better very soon.
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 12/9/2014 1:47 PM (GMT 0)
I hope it works well for you!
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/9/2014 2:52 PM (GMT 0)
Thanks guys. Yeah I hope it helps, I don't believe imuran has done anything for me so I hope this does
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 12/9/2014 3:42 PM (GMT 0)
I didn't think simponi shots hurt much at all and I'm a wimp. Hopefully humira is easy and helps you.
What time are you going?
HouseCallDaily
Regular Member
Joined : Dec 2014
Posts : 40
Posted 12/9/2014 3:48 PM (GMT 0)
Good luck! I take Humira weekly. Found this video to be helpful:
https://www.youtube.com/watch?v=QgcYmoyVIYg
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 12/9/2014 4:05 PM (GMT 0)
guten tag chrissey - i think that means hope it doesn't hurt too much !
pb4
Elite Member
Joined : Feb 2004
Posts : 20577
Posted 12/9/2014 5:51 PM (GMT 0)
I hope it works out great for you!!! Just remember, no matter how much those shots (especially 4 in total the first time around) the pain is nothing compared to the pain of IBD.
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/9/2014 8:26 PM (GMT 0)
Omg you guys just got my loading doses, I totally cried lol. It hurt!!! I'm like panicked but trying to stay calm. Those are gnarley for sure but let's hope it works and no bad side effects! Whew I need a drink lol jk
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 12/9/2014 10:36 PM (GMT 0)
"Whew I need a drink lol "
me too ! good job and thanks for the inspiration
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 12/9/2014 10:47 PM (GMT 0)
The thiings we do for UC!!!! I really hope you start seeing great results soon from the shots. Is it one shot every other week from now on? That's not too bad. 4 must have been rough!
Dr-A
Veteran Member
Joined : Jul 2006
Posts : 2105
Posted 12/9/2014 11:49 PM (GMT 0)
Humira pretty easy. I just poke it in the gut and go. Few times I poked it into a leg muscles hurt. Lesson learned, lol.
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/10/2014 12:17 AM (GMT 0)
Yes notsosickly!
Dr a- haha well the only Prob I have is I don't have tons of cushion I guess not as much as I thought. The nurse said if I weighed more it wouldn't be as bad. Lol weird thing to say. I feel like I could try my belly but kinda nervous to haha
pb4
Elite Member
Joined : Feb 2004
Posts : 20577
Posted 12/10/2014 1:11 AM (GMT 0)
The belly hurts the worst, that's where I had all 4 of my loading doses done at the doctors office, then a nurse came to my house and walked me through doing it myself, in the thighs, just make sure you always pinch and hold the skin while injecting so it doesn't hit anything it shouldn't...it's only suppose to go into pinched clear skin (no scars/birthmarks etc).
I find if I let the pen sit out a bit to warm to room temp, the sting is usually much less and sometimes no stinging at all...half the time I end up pinching my skin a little too hard which tends to leave a bruise behind so I try to be careful about
doing that...I was also instructed not to use the same leg every time but instead to alternate legs (I also now do it once a week) sometimes it hurts and other times it's not bad at all, once I didn't even think the needle went in until I removed the pen and saw the tiny little spot where it did go in...wish I could remember exactly how I pulled that one off lol!
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/10/2014 1:24 AM (GMT 0)
Pb- eek yeah I hope I can get it right! I was too scared to try one today. I'm hoping next time I have the guts lol
pb4
Elite Member
Joined : Feb 2004
Posts : 20577
Posted 12/10/2014 1:40 AM (GMT 0)
Ya, that's why I thought it was great that the nurse made me do it in front of her, so that I could get use to it quicker and it worked like a charm...they also offered to have the nurse come back to my house as often as I needed her to...glad that I felt confident enough to do them myself, her being there really helped with that.
4 is a lot at one time, I had no interest in trying to do it myself with my very first loading dose either cuz I was anxious enough as it was but the second time with the 2 loading doses was pretty easy (still hurt though lol)
twingirl812
Regular Member
Joined : Oct 2014
Posts : 128
Posted 12/10/2014 2:11 AM (GMT 0)
Hey Chrissysoul. Good luck with humira. I was on it for 7 years and felt great. I found if I did some deep breathing ( like Lamaze type of breathing) it helped me. Yes the injections have a tendency to sting ..ouch! but the goal is to get you in remission.The stinging pain doesn't last very long. I would try to reason with the classic line : no pain...no gain. Definitely using it at room temperature was beneficial. Also having a positive attitude along with positive imagery is helpful too!!
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/10/2014 2:37 AM (GMT 0)
Thanks you guys! Twingirl- did humira stop working then?
twingirl812
Regular Member
Joined : Oct 2014
Posts : 128
Posted 12/10/2014 1:01 PM (GMT 0)
Chrissysoul, this past August I began to flare. The reason is that my disease progressed & the Humira at the dose I was taking it, couldn't keep it under control. Sometimes patients can develop antibodies to a drug therefore it would no longer be effective. This was not the story with me. Some Drs. said I should increase the dose of Humira to an injection every week (my dosage & the protocol I was on was 1 injection every other week ). Then some Drs. felt I should take the option of Entyvio. Entyvio was my decision after consulting with some very reputable Drs. here in New York where I live.
In 2007 when I started Humira, It really turned my disease around & gave me my life back. I wish the same for you.
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/11/2014 4:33 AM (GMT 0)
I see. Was it a sudden change to where you all the sudden were sick again? Or was it more gradual? Yeah I guess the drugs really aren't ever going to hold it at bay forever
twingirl812
Regular Member
Joined : Oct 2014
Posts : 128
Posted 12/11/2014 12:52 PM (GMT 0)
To be honest I thought I was really doing well. I was totally asymptomatic going about
my life. I had my annual colonoscopies. They did show improvement in some areas but there were some areas that showed inflammation. At some point my Dr. wanted to add 6MP ( I was already on Humira ).I was not receptive to him on this point. In hindsight, maybe if I had taken his advice maybe I would not have flared this past August. I guess I will never know.
I did learn a lesson though. Sometimes we cant be our own pilot. We have to let the pilot ( our DR.) fly the plane. We however must be very informed passengers along the way.
Getting back to your question, I was feeling great but at end of July I started having throbby pain . I thought at first I might have a UTI. Those tests were negative. Then my blood tests showed High white count, anemia, very high sed rate etc. Cat scan confirmed yes my Crohns/colitis was roaring its ugly head. Also I was bleeding a lot by this time.
Chrissysoul I hope that Humira helps you & gives you a very long run of feeling well. I had 7 years of which I am very grateful for.
With all this said, one must remember,to date we have no cure. Hopefully we are getting closer to a cure.
Wishing you all the best....
Chrissysoul
Veteran Member
Joined : Jun 2012
Posts : 1240
Posted 12/11/2014 5:32 PM (GMT 0)
Twingirl- yes I'm glad you got 7 years. You are right. There is no cure. I think that is what is the hardest part is that the disease can come back whenever it feels like it. I would be happy with even one year of remission from humira haha. So sad
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 12/11/2014 5:53 PM (GMT 0)
I hate that too Chrissy. It's so unfair. Even if you have a stretch without symptoms, it doesn't mean you're "Better". What if we are older and this rears it's ugly head? I Hate the thought of coping with UC symptoms for life.
twingirl812
Regular Member
Joined : Oct 2014
Posts : 128
Posted 12/11/2014 6:29 PM (GMT 0)
This fact is so true..no cure. One day this will change. Until then, we have to live our lives & take it one day at a time. It helps to surround oneself with optimism & positivity. It does no good to dwell on the negatives. Here's looking to better days for us all!!!!
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