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Posted 12/10/2014 7:19 PM (GMT 0)
I can't kick this drained feeling. shakehead
Posted 12/10/2014 8:01 PM (GMT 0)
I've been reading what you've posted on the admin forum. Sounds like you've been through hell and back.
Posted 12/10/2014 8:14 PM (GMT 0)
:( so sorry. *hugs*
Posted 12/10/2014 8:25 PM (GMT 0)
usually shopping makes me feel better but right now I feel so unimaginative i can't even buy gifts online. I am like a zombie. I have anxiety about feeling crappy. What if I always feel like crap from now on?
Posted 12/10/2014 9:09 PM (GMT 0)
Tired of being tired? I'm right there with you. (I normally like to shop when I'm feeling down, too.)

What pulls me out of a funk is yoga and meditation. And, I know this sounds SUPER lame, I go through old camera/phone images and upload them to a blog where I write about all the things I did despite having UC. I then look back as often as needed to remind myself that not everything is horrible.

And if all else fails, I watch: https://www.youtube.com/watch?v=UEQ40Q4XU8o

Hang in there! You're not alone.
Posted 12/10/2014 9:12 PM (GMT 0)
Sorry you're down. Could it be the 6mp?
Posted 12/10/2014 9:17 PM (GMT 0)
((hugs))
Posted 12/10/2014 9:38 PM (GMT 0)
NSSG

how long have you been feeling this way?

How is your quality of sleep at night?

I remember when I was on 6-mp it was the best remission that I ever had, almost like pre-uc but the 6-mp wore me out. My body couldn't tolerate it even at 25 mgs. I switched over to Remicade and was full of energy after I got the 6-mp out of my system.
Posted 12/10/2014 10:10 PM (GMT 0)
I stopped 6mp a while ago. I have been getting remicade but I am not 100% and I am still tapering off pred. That's probably what has me feeling the most awful. Then I had this awful super bug that got me very sick, and since, I've been completely wiped out. I am just bummed because I have no energy and I feel incapable.
Posted 12/10/2014 10:15 PM (GMT 0)
Sorry you're feeling this way :(

I think every human being on Earth deals with the "what if" questions. Having a history of OCD means I have obsessed for years over these questions and have never gotten a satisfactory answer. Hands down the best way to combat them and not worry about these questions is to admit that you don't know what will happen and as difficult as it may sound, learning to accept the crappy feelings and feelings of uncertainty. Usually when we focus on pain or feeling crappy, it amplifies the feeling a ton. It takes time to shift mindset and learn to be okay with uncertainty, and it's certainly not a process that doesn't have bumps and setbacks, but it's the only way I've learned to stay sane in the last few years. Especially now that I have an unpredictable disease like UC.

Are you eating a normal amount of food? I know we have a tendency to eat less due to our disease.

Just offering my 2 cents. I really hope you feel better soon!
Posted 12/10/2014 10:44 PM (GMT 0)
Hugs nssg! Sorry you are feeling so wiped, majorly frustrating. I had a virus that really took me down and it took time to come back...maybe with Remi takes longer, but hopefully u will get there. Feel better!
B
Posted 12/10/2014 10:53 PM (GMT 0)
My husband played the happy endings of some movies to cheer me up. I slept listening to Pride & Prejudice.
Posted 12/10/2014 10:53 PM (GMT 0)

notsosicklygirl said...
I am still tapering off pred. That's probably what has me feeling the most awful.

There's a good chance it's the Pred tapper and withdrawal, it's brutal. Last year after I had my colon removed I suffered afterwards for months due to the Predisone tapper and withdrawal. I went from 35 mgs to 10 mgs in 7 days then 45 days to go from 10 mgs to 0. I was exhauseted, my body hurt, I was moody, couldn't think straight and just felt totally unwell even though I no longer had UC Symptoms.
Posted 12/10/2014 11:03 PM (GMT 0)
Ugh - it's the worst feeling. It won't last forever though - just keep putting one foot in front of the other. Sending hugs and good rest vibes!
Posted 12/10/2014 11:08 PM (GMT 0)
sorry you're feeling like crap nssg -

it won't last forever, so enjoy doing nothing for the time being - and for cripes sake, don't feel guilty about it -
and if it makes you feel any better, i've never once enjoyed shopping wink
Posted 12/11/2014 12:13 AM (GMT 0)
That's the worst. Hope you feel better soon.

A good cup of herbal tea and a cheesy movie on netflix always seem to help me- even when I'm exhausted.
Posted 12/11/2014 1:12 AM (GMT 0)
NSSG, sorry to hear you are having such a hard time. Could possibly be the pred taper. On past occasions, at some point during my taper I would feel like I " hit the wall ". No energy...depressed etc. Hopefully this will pass for you soon.
Just thinking...are you sure there is no anemia present? How is the HGB & RBC levels?
wishing you well....
Posted 12/11/2014 1:26 AM (GMT 0)
AWE, ((((((((((HUGS))))))))) nososicklygirl, know that you're not alone, whether it's the pred or the IBD itself, I'm sure things will improve...this time of year is awful stressful as well, so just do what you can, when you can and don't be hard on yourself...I use to love shopping, no so much anymore cuz now I feel guilty when I shop, but obviously I still shop lol.
Posted 12/11/2014 1:35 AM (GMT 0)
Sorry you are feeling bad.

The root cause is probably tapering Pred, but of course it could be a culmination of "stuff"

Everything passes, and I think you just have to hang in there until it does...you definitely wont always feel like crap!!

Maybe you could ask people around you to help you more? and perhaps you could do something special for yourself – like prepare and eat a meal of your favorite foods, or get a massage? or a pedicure? Can you cut back on some of your jobs, giving yourself more time to relax. If you have pets cuddle them! (important)...and if you have dogs, take them out for a walk, and maybe listen to some music and keep it playing throughout the day.....lots of little things to raise your spirits.

Whatever it takes, but just be kind to yourself really, and remember that these feelings will eventually pass!
Posted 12/11/2014 2:57 AM (GMT 0)
Hey NSSG,

I think we all get to that point sometimes. It feels like things will NEVER change for the better. In the midst of the down times we aren't able to see how it is just a cycle we're going through.

I promise you its a cycle and you'll pull through. Things may not go smoothly, but every time I've been brought down from UC I've come back from it, and you will too.

Use this time on here for us to contribute to you, as you've given so much to us.

Any rest you can get right now will likely be good. Possibly getting outside for short walks may help too.

Thinking of you, hoping for the best.
Posted 12/11/2014 4:52 AM (GMT 0)
Nothing life changing to include. You are so very strong. It is in you, I have felt it. Reach deep...and hang in there. Tomorrow will be better.Hugs and more hugs. Take care of you.
Posted 12/11/2014 11:02 AM (GMT 0)

notsosicklygirl said...
usually shopping makes me feel better but right now I feel so unimaginative i can't even buy gifts online. I am like a zombie. I have anxiety about feeling crappy. What if I always feel like crap from now on?


I don't think you will always feel crappy from now on. Your body needs time to recover. Take it day by day.
Posted 12/11/2014 12:38 PM (GMT 0)
I had mono back in august and this is exactly how i felt. I was on 6mp also at the time. But basically i couldn't recover bc of the 6mp. Hope you get better soon. Try and rest as much as you can.
Posted 12/11/2014 8:14 PM (GMT 0)
Adrina, I know you are speaking to NSSG, but I needed to hear it too. NSSG I hope you cone out of the darkness soon. It's hell to be sick and depressed and I am feeling both as well in a big way!
Posted 12/11/2014 11:54 PM (GMT 0)
i'm sorry you're feeling down but depression must go away and i believe it will be soon :)
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