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How long have you been in remission with uc?

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Ulcerative Colitis
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Posted 12/13/2014 9:01 PM (GMT 0)
I am in symptomatic remission using 2 Lialda per day and a Canasa suppository every 3 night. I have been flare free for 3 1/2 years. I will never ever stop taking my meds. I also still had 2 cm of inflammation left. I will see what the flex sig next year shows. Just because you have no symptoms doesn't mean you have no inflammation.
Posted 12/13/2014 10:48 PM (GMT 0)
sure, cgk!! i hope it helps. i was really desperate at the time when i started feeling those UC pains as i got to 5 mg. i just went to walgreens and bought the 4 mg cherry lozenges. i figured what the heck? i knew surgery was around the corner anyway if i couldn't get off of pred.

i was shocked my gi went for it, too. i ended up seeing him after i had been on lozenges and told him how much they helped me. he knew about the studies so he wrote me a script for the patches. once i got to 5 lozenges a day, my teeth were getting really gross so it was just easier putting a patch on instead.
Posted 12/14/2014 1:46 AM (GMT 0)
Thanks, Bananagirl - I hope it works too. I had one this afternoon - I felt really gross afterwards but my tummy has been calm. We'll see how it goes - I quit smoking back in 2004 and can't believe I had nicotine every day...haha.

BTW - did you used to post on the ihaveuc site?? I think we corresponded there some - I'm Caroline. I remember how much trouble you had and so I was really happy to see that you were doing so well. Glad you are enjoying a long term remission - you certainly paid your dues!
Posted 12/14/2014 3:12 AM (GMT 0)
yeah, i felt nauseous and dizzy when i started nicotine. i'd never smoked so it was a shock to my system. you will probably feel the same since you haven't smoked in 10 years!

i used to post on ihaveuc but noticed they were anti medicine and all for natural supplements so i stopped going on there. i felt like i was doing something wrong when none of the natural stuff worked for me. just a very discouraging site to be on.

if u ever wanna talk paleo or uc, u can email me. i have so many good recipes!
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