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Posted 12/30/2014 4:57 AM (GMT 0)
Study: 2/3 of mesalamine users slack off, especially enemas.


http://www.gastroendonews.com/ViewArticle.aspx?d=In%2Bthe%2BNews&d_id=187&i=December+2014&i_id=1133&a_id=28964
Posted 12/30/2014 5:06 AM (GMT 0)
I totally see that....my GI pretty much said not many of his patients wanted to use them. I can't check out the link on my phone..will check it out later.
Posted 12/30/2014 5:06 AM (GMT 0)
Unfortunately that is true for almost every disease. Wish i could say I was innocent in this
Posted 12/30/2014 5:09 AM (GMT 0)
I've slacked off when it came to enemas in the past, people often do because they feel discouraged when it doesn't work or they feel as though it isn't nexessary when their symptoms have settled, and there isn't a single individual on any 5-ASA that hasn't skipped a dosage at least once. I'd go as far as saying everyone is somewhat guilty of letting the ball slip.
Posted 12/30/2014 5:21 AM (GMT 0)
If I skip one night (forgetting or "I'll do a Canasa in the a.m.") I have problems. My first GI wouldn't even prescribe them to me because he said patients don't use them. (What an attitude. Can you believe that?)
Posted 12/30/2014 9:36 AM (GMT 0)
I have delayed taking mesalamine doses, but thanks to smartphone apps I don't think i've ever completely missed a dose. Absolutely can't blame someone for missing one though. In today's busy world, sometimes it's easy for one to slip and forget.

It's easier to skip doses when you're flaring already and know that the medicine isn't doing anything. I know it probably helps lessen flare severity, but when you're already in a bad flare it doesn't feel like it does much.
Posted 12/30/2014 12:45 PM (GMT 0)
IMO, when you "know" the meds are doing nothing, the meds may become less effective - what people think about the efficacy of meds is often upto 15% of the effect (plus or minus) in some studies
Posted 12/30/2014 5:27 PM (GMT 0)
I don't use my enemas any more but do use Canasa every other night usually. My inflammation is only the last 2cm so the supps are more effective. After my flex sig in February if things have worsened then I will most likely go back to enemas.
Posted 12/30/2014 5:44 PM (GMT 0)
And my GI would not prescribe me a maintenance dose... I'd gladly use them more often if she would prescribe them!
Posted 12/30/2014 6:09 PM (GMT 0)
What's your sig, Jean123
Posted 12/30/2014 6:11 PM (GMT 0)
Oops! Sorry. Here it is:
Posted 12/30/2014 6:24 PM (GMT 0)
I am pretty bad with compliance but it's mostly because I don't feel they do anything for me. Why torture yourself for no result? I've been doing them the past few nights and it hasn't been a terrible chore, just squeeze the bottle and go to bed. I don't know why people have a problem with it if it works for them. If it doesn't work, I get it, why bother?
Posted 12/30/2014 6:28 PM (GMT 0)
non compliance is a dirty word. I think it's fine to self dose when feeling better. I take as many as 12 asacol tabs a day when flaring and taper down to just a few when feeling well. I don't look at it as non compliance, I feel good about lessening any potential side effects and God knows if the docs had to take these drugs, they'd do the same!
Posted 12/30/2014 6:38 PM (GMT 0)
That wouldn't be noncompliance as it would be self monitoring with agreement for maintenance and tapering plan withbthe doctor.

noncompliance would include ignoring proper treatment and common sense in my perspective. If something doesn't work then it doesnt work.....keep in mind there are various reasons the that as well (sensitivity, too high dosage, intolerance, psychological perception, too low dosage, wrong medication for one's needs, other factors perceived as intolerance, etc)
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