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Ulcerative Colitis
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Posted 1/14/2015 2:11 PM (GMT 0)
My DD had FMT during Christmas holidays. The following symptoms are still there.


1> She still has abdominal pain when I press her tummy along the colon. She says her pain level is always 1 in pain scale and she does not complain as she has got used to it. But when I press her colon she says her pain increases. does it mean her inflammation is still high and is not reducing?

2> She still burps and now the other surprising aspect is that her stool consistency has now become 2 and in fact it was 1 yesterday. She is pooping just once a day. her donor consistency is 4 where as my DD consistency is 2 or 1.
Posted 1/14/2015 2:42 PM (GMT 0)
It could be related to indigestion or lactose intolerance. I had cramping once because of lemon water for three days, and have had bloating because of lactose issues after that. But then it could be many things. Great that she's only going once. I'm about to start FMT as well. I'm in remission going 2-3 times but this would be the best time for FMT. Prior digestive issues may still linger or not subside completely. Btw, I follow the Low Fodmap diet with success, it's easy, you might want to look into it.
Posted 1/14/2015 2:47 PM (GMT 0)
if this was for UC and not c-diff, it may take multiple FMT over months to induce remission. Also, it does not work for everybody.
Posted 1/14/2015 3:01 PM (GMT 0)
Interesting she is only going once a day. By those metrics, she is probably in remission. Would continue the FMTs and see where it leads.

The burps could be reflux, which is usually from an underproduction of stomach acid. What medications is she on?

Best.

Post Edited (Guardian7) : 1/14/2015 8:04:51 AM (GMT-7)

Posted 1/14/2015 3:17 PM (GMT 0)
Guardian

She takes Pentasa 1.5 mg ,Imuran 25mg fish oil 1200 mcg, Seeking health Optimal start multi vitamin, Methyfolate 400mcg, at times vitamin c if someone is sick at home, L Glutamine 1200 mg, Vitamin D 1000 icu daily.

If I press along her colon, she complains that it pains her. Does that mean inflammation is high. This has not reduced at all. Do you see any thing wrong with supplements that she is taking? We discontinued probiotics supplements after we started FMT.


she was originally diagnosed left sided colitis (1st scope), 2nd scope pancolitis, 3rd scope as crohns. in Nov she came positive once for C Diff. She has had about 14 FMTs so far in last 1 month.

Post Edited (kamakya) : 1/14/2015 8:45:55 AM (GMT-7)

Posted 1/14/2015 4:12 PM (GMT 0)
Hi Kamakya -

1) Imuran definitely caused reflux symptoms and made me burp quite a bit when I was on it. I took around 150 mg, but it still caused those issues @ 25 and 50 mg. I think there's something about it that reduces stomach acid production and causes reflux, though I don't think it's very well documented. You might have to discuss this with your doctor.

2) I don't see any issues with those supplements but then again it's a very personal thing - I would just continue to measure what works for her and change the dosages accordingly. There is a possibility that l-glutamine could be causing some of those abdominal pains, because I also had issues taking it.

3) If she is getting pain, it is likely there is some inflammation. It is very interesting she is going once a day because that is ideal - is she getting any cramping or blood?

Best.
Posted 1/14/2015 5:29 PM (GMT 0)
Hi Guardian,

There is no cramping or blood. When I ask her without pressing her abdomen she says very light pain (Now this light pain has now become her new normal and she says does not remember when she never had any - her journey is almost 15 mths). My worry is only when I press her abdomen. It has been almost a month now after her initial FMT. I was hoping for better pain reduction than this.

Had a question. Typically when abdomen is pressed the pain associated comes from inflammation or ulcer?
Posted 1/14/2015 5:51 PM (GMT 0)
Sorry to hear about the pain. I think no cramping and blood are good signs. It might also take time for the inflammation to subside as well, so it could be a waiting game. I think everyone has some degree of inflammation, with the medications doing some job of controlling it. It could also be foods causing it, so you will have to experiment some. Other than that you might have to work with the doctor to figure it out.

Best.

-G7
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