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GI Appt today, still not in remission (?)

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Ulcerative Colitis
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Posted 1/27/2015 3:26 PM (GMT 0)
Hi everyone: I am having my 3-mo check this afternoon. Still on 4 g Mesalamine oral and rectal meds, about 1 and a half months post pred taper. I still have frequent loose stools in the morning (usually 2-3) then breakfast, and then (usually) another poo, often diarrhea. Still trying to pinpoint what foods may be contributing to my upset. I have no pain, cramping, blood or tenesmus. I'm pretty sure this is not remission, though I'm so much better than I was...slowly regaining a little weight (up to 95 from 90). Still lots of bowel sounds, all day long. Still racing thoughts, anxiety and depression, symptoms that arose during course of steroids.

I see my GI this afternoon. She's pretty on top of it, but I was wondering if there are some suggestions or questions I might ask her. She didn't ask for bloodwork in advance.
Posted 1/27/2015 3:40 PM (GMT 0)
I think you are doing alright for a 3 month check. Mesalamines are not exactly quick acting meds but I understand the frustration. I'd be interested in hearing what your GI has to offer.
Posted 1/27/2015 4:43 PM (GMT 0)
You're progressing in the right direction. It took me 2.5 years to achieve remission... I hope my story isn't typical.
Posted 1/27/2015 5:14 PM (GMT 0)
You may be better now than before but I think the biggest factor is, are you better now than when you were on the pred? If the answer is yes then that's a good thing. If you have done some backsliding since tapering off the pred that could be worrisome. Can't remember if you were taking probiotics or not but if not, that might be something to look into. Don't expect your GI to be big into probiotics. You seem fairly knowledgeable so I can't really think of anything to discuss with the GI. Many of the alternative treatments that work are often outside the scope of GI knowledge so you have to go down that path on your own. Most GI's are receptive to that.
Posted 1/27/2015 7:05 PM (GMT 0)
Thanks everyone. I was better on Prednisone at 40 mg than I am now, but the side effects were intolerable. That's why I don't think I'm in remission.

I'll let you know her advice.

This has been a wild ride, thank goodness for HW!
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