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Posted 5/7/2015 9:38 PM (GMT 0)
So I have been good for almost 3 years now-no diarrhea, no blood, no mucus. I do get reflux attacks once in a while which aren't any fun.
for about a week now, I have had gas, indigestion on and off and then when I have to go to the bathroom, i get very crampy and it is a bit loose, not D at all, but very odorous.
I have been taking Pepto and Gas X to help deal.

Any thoughts? I am just always afraid of a flare.
Posted 5/7/2015 9:50 PM (GMT 0)
Yes
Posted 5/7/2015 10:28 PM (GMT 0)
Thank you Gary for replying so quickly,
Sobad reflux, gassiness, and odorous soft/loose stool 1x day can be a flare-without blood, diarrhea or mucous?
I am thinking to double my Lialda and start the mesalime enemas?
Posted 5/7/2015 10:54 PM (GMT 0)
Sure it can be the start. I would up the meds for sure. It certainly won't hurt. Do you not always stay on a maintenance dose of the enemas like 2-3 times a week. If you don't I would think about it.
Posted 5/8/2015 12:09 AM (GMT 0)
Odorous soft/loose stool could be steatorrhea. Do they float? Are they oily?
Posted 5/8/2015 12:11 AM (GMT 0)
I have never done maintenance enemas but am thinking I will. It is just odd because once I evacuate, I feel almost completely better until the next day when the cycle starts again. Does that make sense?
Posted 5/8/2015 3:26 PM (GMT 0)
Yes, you're flaring. Contact your gastroenterologist to check it out, and prescribe you medications to get through it. Prednisone, increased dosages of your current medications (if not already at maximum) are common.

Flares don't always involve blood, some flares are milder than others are.
Posted 5/9/2015 5:30 PM (GMT 0)
Yep, flaring. Seems limited in the rectum flaring, and you should be on the enemas. Can you not use mesalamine retention enemas?

Don't take Pepto....it's got lots of aluminum in it.

Get on a good probiotic as well.

You could start on the steroid enemas for now, but do ask the doc if you can try the mesalamine as well.

spasming in the lower colon can also to a number on your stomach...nausea/cramping. it's definitely a symptom I get when I start to flare....and it's also a symptom as I'm healing when the location has regressed and become very limited.

Antispasmodics help immensely with that discomfort.

Keep us posted how you're doing,
q
Posted 5/10/2015 2:22 PM (GMT 0)
The smelliness is a big clue. You are starting to flare and if you address it now you may be able to keep it short and mild.

Don't bother spending any time wondering if it's a flare, just start treating it. Hydrocortisone enemas and anything else your doctor suggest would be good. You may want to go to a low fiber/low residue diet, too
Posted 5/13/2015 1:58 AM (GMT 0)
Ok so I thought I was flaring and now I am not so sure. 3 1/2 weeks ago I started drinking Shakeology in the am everyday with a little fruit. I looked and didn't see any artificial sweeteners as I know they bother me (mostly headaches so I avoid them). I was good for the first 2 1/2 weeks and then last week was when the problems started with the odorous, 1x day stool, gas, cramps and bad reflux.
My GI was against me doing the enemas and felt was reflux and told me to double my protonic. (side note: my reflux is usually well controlled with diet * no soda, no carbonation, no bananas, no peppers, little butter). I normally don't take reflux meds each day but I have started taking them again and I stopped the Shakeology as of last Wednesday and only went to the bathroom on Thursday and now finally today (Tuesday) and thing have improved.
My question is can a reflux Flare cause all of those symptoms?
Posted 5/17/2015 8:56 PM (GMT 0)
ok so it is not a reflux flare and Doc agreed it is likely a UC flare. He doubled my meds so Lialda 4 a day, 2 rowasa enemas a day, protonix 40 mg 1 x day.
Reflux is almost non-existent and I haven't gone to the bathroom since Friday. It seems now I go every 2 days and without the pain and sick feeling.
However, I do have pain that is right sided under rib cage and spreads to the right mid to upper back - gas comes 1 or 2 x a day and it only lasts for about 20-40 seconds but is very intense? That's it-no other symptoms.

Any thoughts on what this could be? I never had anything like this and it just seems odd and since I don't know when it is coming-gas x isn't really helping.
Posted 5/18/2015 1:52 AM (GMT 0)
You've stopped the pepto?

Stop the Gas-x and ask for an antispasmodic such as Bentyl.

You're flaring...I don't see why he has you on the enemas twice a day at this point...nightly would be good unless you don't improve or are getting worse.

Flaring/spasming gives upper gastro pain/discomfort. I get it all the time just before I recognise flare (butt) symptoms.

Call and ask for the antispasmodic.

Hang tough....it'll take a few days to a week before you notice some improvement.

q
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