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Ordered Second Ubiome Kit Today

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Ulcerative Colitis
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Posted 8/7/2015 8:42 PM (GMT 0)
Gary, I took my first Olympia Labs Grape Seed Extract pill a few minutes ago. How soon after you started taking the supplement did you notice any sort of change? A couple of days? Week?
Posted 8/7/2015 9:49 PM (GMT 0)
When I was taking only one capsule per day I don't remember seeing much difference. In fact, I think it wasn't showing me enough improvement to make it worth reordering. I think as a last resort I started taking two per day, at which time it must have made me considerably better because I obviously reordered it and have been ever since for at least two years now. Then I got cocky and tried three per day and got worse but after dropping back down to two I returned to where I had been taking that dose. It's still a good idea to only use one capsule per day to start off and see what happens. If it doesn't make you worse and it doesn't make you better, then try two per day. Can't remember the exact time frames but it was probably several days on the two capsule dose before I noticed that it was working.
Posted 8/8/2015 2:43 AM (GMT 0)
UCSlayer- I noticed more formed stool about three-five days after starting the GSE at one capsule a day.

Gary-my definition of mild UC (different than the official definition) is UC that stays in full, or close to full, remission most of the time. Extreme food restrictions aren't necessary. Flares don't happen more than once a year and they're treated with an increase in meds or supplements, hydrocortisone enemas, and/or a short-term dose of Prednisone. This pattern stays the same over time and there's no need to go up the medication ladder.

By these standards, my UC is mild. I hope it stays that way! The unpredictability of this disease is one of the worst things about it.
Posted 8/18/2015 11:52 AM (GMT 0)
So I got my ubiome back today. I'm a long way from understanding it all yet but the headline stuff is making me wonder if I should join in the GSE experiment as I'm also big on firmicutes and low on bacteroidetes

Firmicutes 67.77%

Proteobacteria 18.4%

Actinobacteria 3.99%

Bacteroidetes 3.53%

Ignavibacteriae 0.06%

I think dominance of proteo and actino over bacteroidetes is a typical UC marker?

I was using mesalazine enemas at the time of the sample, although I went 48 hrs without to take it, I'm not sure if that would effect the result
Posted 8/19/2015 4:36 PM (GMT 0)
Went to buy some GSE today and found it in a formula together with some probiotics (presumably the GSE doesn't kill off the probiotics??)

Will give it a go and see what happens. Ingredients are

Vitamin C 100 mg
Green Tea Extract 30% 45 mg
Grape Seed Extract 95% OPC 45 mg
Pine Bark Extract 95% OPC 45mg

plus Lactobacillus acidophilus UBLA-34, Bifidobacterium longum UBBL-64, Bifidobacterium breve UBBBr-01, Bifidobacterium infantis UBBI-01 (2.5 billion)

Also got some n-acetylglucosamine on order as my really high proportion of serratia (proteobacteria), 93x enriched compared to average may perhaps be responsive to this from what I can make out from reading.
Posted 8/19/2015 5:17 PM (GMT 0)
I ran into that when I was looking for some. That's why I always order mine online so I can get GSE only with nothing else. I hate getting combination things because you never know if some are helping while others hurt at the same time. I even do that with meds like when I have a cold. If I want a pain reliever, decongestant, antihistamine, and cough suppressant then I buy four different things. I wonder how UCslayer is doing since starting the GSE.
Posted 8/19/2015 5:28 PM (GMT 0)
I agree Gary, it would be better to try alone. I get impatient though! I will see how this goes as my sample showed no breve, longum or infantis and then try GSE alone possibly.
Posted 8/19/2015 6:28 PM (GMT 0)
That is an interesting combination. Just for your info though, when I did my first gut sample a couple of years ago I had been on both VSL#3 and Prescript Assist probiotics for quite a while and when I got my sample results I was very surprised to see that not even one of the strains in either probiotic showed up in my gut sample, and yet I know for a fact that both made my UC better. I don't really have an explanation for that other than the sample results only show what comes out and is not representative of what actually stays in. I'm not really sure how that factors into it all though.
Posted 8/19/2015 7:26 PM (GMT 0)
I think probably you need to test a lot to get a full idea, and even then, as you say, it is the stool sample which they say can differ a lot from the flora in the mucous layer. Comparing my sample though to a few I've found on blogs, it is not very diverse, which again they say is typical of UC the longer it goes on. These guys who are blogging about regular testing seem to show lots of difference according to what they have been eating or drinking etc.

A long time ago I did the Genova test which indicates levels of helpful bacteria as well as pathogenic and that was three samples over a week I think. I'd love to be able to afford to do that one, or one of the others like Great Plains regularly...but just too costly. :-(
Posted 9/12/2015 10:15 PM (GMT 0)
Gary - my uBiome results came in, and my firmicutes were crazy high. I've already ordered your grape seed extract and am excited to see if it helps - I am in remission and am doing great, but am always looking to do better and hopefully really cement this remission in. Did you get your second results in yet?
Posted 9/12/2015 10:52 PM (GMT 0)
Yes. I posted my results in a new thread. That's weird that your results were that off and yet you are in remission. Take it slow with the GSE, especially since you are in remission. You can't trust anything with this crazy disease.
Posted 9/13/2015 12:18 AM (GMT 0)
Thanks, Gary- I missed that thread and will have to track it down. You do bring up a good point- when I sent my sample in back in early August I was actually coming out of a nasty flare, so I wonder if things have shifted since that time. I'll still try the GSE and see if it does anything. Thanks!
Posted 12/9/2015 12:14 AM (GMT 0)
Im considering the same uBiome test - is it possible to do it somewhere in Europe? What were the benefits of your knowing the kind of bacteria living in your gut, was it just for information sake or you did something about it, e.g. antibiotic treatment?
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