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Blood clot filter during flare

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Ulcerative Colitis
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Posted 9/4/2015 12:50 PM (GMT 0)
Do any of the people here have this blood clot filter? There is a link between UC flares and DVTs during flares.

Fatal blood clot filter:

www.nbcnews.com/health/health-news/did-blood-clot-filter-used-thousands-americans-have-fatal-flaw-n384536
Posted 9/6/2015 12:57 PM (GMT 0)
No one? My GI says there is a huge correlation with UC and DVTs.
Posted 9/6/2015 2:22 PM (GMT 0)
Yes there is a strong link between IBD (not UC specifically) and blood clots. I've had a number - legs and lungs. But never heard of the filter. My understanding is (as with me) prescription blood thinners (whether pill or injectable) are the norm. This maybe why you've had no response ... It was because you asked specifically about the filter.
Posted 9/6/2015 3:09 PM (GMT 0)
No to the original question. And I've never had a blood clot.
Taking curcumin may be preventative for clots but of course those already on a blood thinner should talk to their MD.

Here's a study about curcumin and blood clots:
www.ncbi.nlm.nih.gov/pubmed/22531131
Posted 9/6/2015 3:15 PM (GMT 0)
It is impossible to be on blood thinners during a flare, at least for the kind of flares I get. And now we are stuck with these filters which are ticking bombs. Can this disease get any more fun?
Posted 9/6/2015 4:32 PM (GMT 0)
IVC filters are not very common, though I do remember seeing someone post here once that they had to have one placed, sorry I don't recall who it is.
Posted 9/6/2015 8:56 PM (GMT 0)
I'm really interested in anyone who has a positive comment ... Perhaps about one of the other makes not referred to in the article. As I can not cope currently with current combinations (without blood transfusions).

Beatuc - are you on one of these already - as you said blood thinners were impossible for you? If so, interested to know what thinners you tried and failed with.
Posted 9/6/2015 10:42 PM (GMT 0)
I was on Cumadin for a bit, but when a flare started I had to stop, hence the filter which was a good level of protection against strokes etc. As I said, it's impossible to stay on blood thinners while in a flare, you will bleed to death. DVTs and UC are a really bad combination for both my doctors and myself.
Posted 9/7/2015 1:05 AM (GMT 0)
I have Factor V Leiden which makes me higher risk for clots. I've had clots in both basilic veins after being an inpatient but never a true DVT. I do not have a filter; my pcp puts me on lovenox while symptomatic which is usually about 2 weeks. I saw the TV interview of the same article and I believe the Recovery filter was taken off of the market in 2005. I work in the operating room and IVC filters are often placed. If you need a filter, I would not let this story deter you.
Posted 9/7/2015 5:25 AM (GMT 0)
Thanks. After 2 DVTS and two bouts of bi lat PEs I need something all the time to reduce the risk. However even when not flaring as such ... Just living with the IBD norm ... I'm losing too much blood. Knowing the filters are used successfully is incredibly helpful.

Beatuc - how long have you had yours? Any issues?
Posted 9/7/2015 1:03 PM (GMT 0)
over 2 years. No issues so far.There are over 250000 of these filters installed every year, it's no as uncommon as folks think.
Posted 9/7/2015 9:02 PM (GMT 0)

beatUC said...
As I said, it's impossible to stay on blood thinners while in a flare, you will bleed to death. DVTs and UC are a really bad combination for both my doctors and myself.

I have never had a problem with blood thinners like coumadin except when I was allowed to halt in half the time from 2 hour MRI/MRV of the brain which showed complete reversal of saggital sinus thrombosis or stroke. THAT is more common to UC people.

So when tapering off coumadin I mistakenly began ramping up curcumin and that got noticed and I stopped immediately. That is the only problem I ever noticed. It was amplified effect, compounding and not additive.

While on heparin drip in the ICU I concealed any UC blood because you need the the blood thinner to stop the 2nd and the 3rd clot. That strategy paid off and I was always amazed how coumadin at home never increased UC bleeding. I was on it at least one other time and I get more increased bleeding from taking too many supplements that have that characteristic.

I have even told them at the coumadin clinic to increase my dosage because I intended to eat a large bowl of spinach consistently every day to guard again worsening UC flare. They complied.

I think this is because the UC bleeding its not due to a lack of coagulants. ICU staff was clearly concerned for obvious reasons.

For me this clot business is always related to being on prednisone and never while not on it. I am very active and workout every day this has to help but I watched super active neighbor kayaking biking get nailed with DVT.

Post Edited (aguywithuc) : 9/7/2015 3:06:43 PM (GMT-6)

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