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Antibodies to remicade

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Ulcerative Colitis
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Posted 9/21/2015 10:29 PM (GMT 0)
Thanks I will keep that in mind
I'm going to the doctor in a couple weeks and I presume we will evaluate what's going on
Posted 9/22/2015 12:01 AM (GMT 0)
Hi DiKid, I was wondering how you were doing. I get terrible joint pain too and yes, my Dr. claims it is also the UC and not the remicade.

I do find that eating a low inflammatory diet helps. The days I eat a lot of sugar....I pay. I also find that the days I don't workout actually feel worse. It doesn't make much sense but maybe joints stiffen up?

Anyway, I am glad the remicade is still working for you. I am still on double doses too. I think when we get down to single doses, there will be less side effects. here's hoping....
Posted 9/22/2015 12:17 AM (GMT 0)
Did you notice the joint pains with the prednisone taper. Because that's when I got bad so it's not necessarily the infusion.
I got my last dose of iv steroids by the infusion and I finished my taper just days before that.
Ask ur doc to have you checked for histone antibodies, infxr ( mayo code), antinuclear, Ana titers
This will test for antibodies for remicade and indications for joint pain that is caused by remicade. It can also tell you how the remicade is going to work. And how much remicade is still in hour body.
I think insurance covered those tests but not 100 percent yet.
Posted 9/23/2015 2:00 AM (GMT 0)
@dikid how are your symptoms going at this point? What infusion are you at? My gi is doubling my next dose.
Posted 9/24/2015 3:34 AM (GMT 0)
My joint pain is a little better so I'm hoping it was from the steroids taper
I get my 5th infusion next Friday and I hope to update them

I'm glad you are trying the double dose
It really helps a lot of people
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