Tons of blood

I have been doing pretty well lately aside for tiny bits of blood and mucous and minimal cramping.
I had a bit more blood and mucous than usual last night and
Just now I went to the bathroom and passed a soft well formed stool but blood is dripping.
I don't feel any hemmies and the toilet bowl looks like I poured red kool-aid into it

I do not have any rectal or anal pain and I don't think I was straining.

Any advice as this is giving me anxiety.
Thanks

It's not a good sign that remicade can't last you over a week now at double the dose. Have you been on any other biologics? Increasing the frequency to monthly is an option I've heard of but it doesn't seem you even get four weeks out of it.

Thanks for all the replies. I will email my doctor tomorrow.
I am really not suffering like I was when I was doing really badly. The pain is not even close to what I was experiencing but there was a lot of blood loss this evening.
I am terrified to take prednisone again as it made me nuts and I am still trying to lose the 30 lbs I gained while on it. I have only been off steroids for about 2 months now.

I'm have not tried any other biologics yet as I only got diagnosed about 6 months ago and was not having enough of a response to iv steroids and mesalamine.

I will look into rectal meds

Thanks again for your suggestions. It helps to have somewhere to go because my family doesn't get it.

The blood is mostly bright red aside for a clot and a very little bit of darker blood.
It is way more blood than when I have my period but I'm sure it's less than it looks like as it stains the water red too.
I don't feel sick like I felt when I was flaring badly so maybe it is a hemmie. I don't know how to tell if I can't see or feel it but that would be my best case scenario over dripping blood.
Being that I'm anemic, I can't afford more blood loss.

In my case changing my diet was needed to eliminate bleeding. Removing wheat/gluten made bleeding stop almost overnight but eliminating insoluble fiber was also necessary. Many other diet mods. were also made but the two mentioned (for me) were directly related to bleeding.

Adding a rectal - enema or suppository should help with the blood. Maybe start with Rowasa and if that doesn't help step it up to a steroid based one...

I am currently switching between Rowasa and Cort enemas nightly.

i think the same. i can't imagine stopping bleeding without salofalk enemas

I haven't completely stopped bleeding since I got UC I always get little speckes
On Friday I had a bit more than I've had in a while and than on Saturday night I was dripping tons of blood.
Today it was a little less blood than yesterday.

When I was in the worst of my flare I had this amount of blood but it was mixed with liquid Ds and it was full of clots. Last night was only one or two clots. So I'm thinking the worst of it is down in the lower parts of my rectum or colon.
I have cortifoam and I did use it before my last infusion to help with some tenesmus but I really rather stay off of steroids if I can as they really bother me.
Thanks for all your advice. I'm trying to work up the courage to call my doctor ( when I'm well I have no problem calling but ever since they made me go to the hospital when I called to ask for advice about getting worse I'm terrified of going back to the hospital. I was stuck there for 2 weeks and than I went home for 3 days and got worse, they made me come in for another week and even though I don't think they will make me come in I'm still terrified that maybe they will- call me crazy if you like)

Dikid - I am the same way. I HATE steroids. All forms of them. They make me insane and not stable. I have been hospitalized twice since my diagnosis. Both of those times I let my flares get too far along that I had no choice. And the first time I had no pain with the blood. Just tons of blood and going 20 times a day.

I don't like cortifoam. It irritates me down there but you may want to try cort enemas. They have very low absorption rates into the bloodstream, can help quickly and most of all keep you out of the hospital. Start with one every other night and see how that goes. That's why I alternate between corts and rowasa. I actually feel like I do better not doing them every night.

And if the side effects are really getting to you try something like Ativan or Kilonopin along with them. Then as you taper the steroids you can taper those as well. Whatever it takes to stay balanced and get healthy. Good luck :)

I am thankful to be done with steroids. I gained probably 30 from steroids a few years ago, luckily i was very determined to lose to weight. I hiked up hill 5-6 miles every morning, that got me back into shape but I never got my pre-pred body back exactly. Since having surgery, I am the closest I've been. I don't know if it was some other med that was causing me to keep weight on or if it was the UC itself, no idea, but i am thankful to feel like myself again. I would lose a lot while flaring but the only thing that helped was pred and that always made me gain 2x as much as I lost.

I think in your case, you need to use rectal meds regularly. One cortifoam isn't going to cut it, you need to do it every day for a while and then switch to mesalamine or just try the mesalamine. I've heard there is uceris foam now too, mabe you can give that a try. Also, if you have to do steroids again, maybe iceris would be an option - it sounds like you're doing better so I wouldn't think about it now but keep it in your head and ask your GI if he ever mentions pred. I did much better on uceris as far as side effects go.

Yup it's being monitored. But it's too low. I have been taking iron for months and it is barely creeping up
I will be seeing a hematologist shortly who will decide if he wants me on iron infusions.
I can't increase my oral iron intake as it already irritates me and more would be the end of me