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Ulcerative Colitis
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Posted 10/22/2015 7:52 PM (GMT 0)
Hi there I have severe colitis and am on high doses of prednisone. Every time I taper down it gets worse. At 10 mg. I was going trying to get on ldn, but at 15 flared badly. I have heard you need to be at 10 mg. and not higher to take it? Is this true? Additionally how can someone like me even safely try ldn, without flaring? Any way other drugs or anything that wouldn't react with ldn?
Posted 10/22/2015 9:33 PM (GMT 0)
Tapering 5mg at a time can often cause problems. Many having returning symptoms at 20mg or round about. Try going 2.5mg so 20, 17.5, 15 and so on. If this fails go by 1mg per week. Be persistent and do not stop the medication. After several unsuccessful tapers I was finally able to get off the Pred after close to a year by going 0.5mg a week however blood did return but I was in a better plan symptomatically than when jumping for 20mg to 15mg.

Topical treatment (rectal meds) may be helpful in the tapering process. I recommend asking your GI about these.
Posted 10/23/2015 12:22 AM (GMT 0)
If you cannot get below 10mgs of prednisone then your uc maintenance medications are not sufficient. What uc medications are you taking? What have you tried? Perhaps we can suggest.

I cannot advise you on ldn, use this forum's search function as it has been discussed a number of times. There's some info about ldn in the resources thread at the top of this forum as well.
Posted 10/23/2015 12:28 AM (GMT 0)
i dont think there are rules about ldn and prednisone but i could be wrong. i've never heard of any. ldn didn't give me any gi symptoms but did give me insomnia. i only took it for about 3 months and had to stop because i had a colonoscopy. my scope was so bad that i knew i couldn't continue with it. doctor couldnt even get past my descending colon due to inflammation.
Posted 10/23/2015 12:35 AM (GMT 0)
I'm not on any other medicines currently I think this is the problem haha. I am taking a lot of the typical vitamins and herbs you see on here, vitamin D, turmeric ect. In addition I have previously had a lot of success with medical marijuana, and cbd oil. But yeah I actually was tapering by 2.5 after 20 mg.
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