Totes Magotes-how are you doing?

Hi kiptyn!! I'm doing ok. Had a busy couple of weeks. Had a job interview. I'm trying to get into teaching. I got a long term sub position but I ended up having to turn it down. Just wasn't the right fit for me.

I'm feeling ok. I'm 4 weeks post double infusion. The blood stopped a week after the infusion. Still dealing with mucus and some cramping and slight urgency. Frequency has calmed down in the last week to 1-3 (it was all over the place after I got my period and stopped breast feeding). I'm weaning the uceris. Only a couple pills left. Down to every 3 days. Colocort every other day which I will taper once I'm stable off uceris.

I haven't started the curcumin. It's in my vitamin cabinet and every day I think I should start it but I'm just nervous to add anything in. Are there any ill side effects that can happen? I want to make sure I know what's what.

I'm actually ovulating again and that's thrown some things into the mix and I know my period will too. Just trying to get a little stabilization as I exit post partum. I haven't breast fed in almost a month but I still haven't dried up completely!

I get my next double dose of remicade in 3 weeks. My biggest issue right now is I tried smoking to help things about 6 weeks ago. It doesn't help but now I'm nervous to stop. I'm at 2-4 a day. It's the worst!!!!

How are you? Thanks for checking in on me ☺️

Momto2boys! Been thinking about you too. How are you doing?? How's the taper?

On a side note did you start the curcumin recently? How did you start and any noticeable side effects - good ur bad?

I'm glad to hear you're doing well. The taper process is annoying. But taking it slow is the best to do so u don't have to start over.

I shed from steroids too. My hair dresser worked with me too. I also had post partum shed so for like 3 months it looked like a rat was eating my drain!

I lost my baby weight rather quickly. I only gained 25 lbs which I was grateful and proud for because I was so sick the second time. I did whatever I could to eat regardless of how many trips to the potty it created. But after with breastfeeding and a flare i lost the weight with too much ease. People comment to me all the time how thin I've become and how jealous they are. It takes everything in me not to say that I would gladly pack on 20 lbs and never flare again.

I hate the whole invisible illness bs. I want to wear a t shirt sometimes that has a picture of an ulcerated colon.

I laugh at my hair now. I'm in chia pet mode. Still losing but have the stick straight out regrowth.

I'm sure as you continue to taper the puffiness will go away. Prednisone is an awful necessity sometimes. I truly hate it. It's never gotten me 100% but keeps me from ending up in the hospital.

TotesMagotes said...
People comment to me all the time how thin I've become and how jealous they are. It takes everything in me not to say that I would gladly pack on 20 lbs and never flare again.

I hate the whole invisible illness bs. I want to wear a t shirt sometimes that has a picture of an ulcerated colon.

Yeah, seriously, people just don't get our suffering, and the horrible changes uc causes to our bodies. The next time someone says something, just say all excited/enthusiastically: I found this great new diet that really works! It's called IBD, I lost 20 pounds in just a few weeks time, I wasn't even hungry and hardly ate anything at all. All I had to do is have frequent bloody diarrhea, be doubled over in pain on my bathroom floor, and housebound for a few weeks. You should totally try it, I recommend Googling IBD for more information! But then again, I'm a total wise-as$

iPoop I'm going to copy and paste that onto a piece of paper. Laminate it and hand it over to the next person that comments on my "wow you're so tiny figure".

Absolutely priceless.

well said, iPoop!